Constant pain: Hi everyone. Still waiting... - Endometriosis UK

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Constant pain

Topshopdreams123 profile image
8 Replies

Hi everyone.

Still waiting for a date for my laparoscopy after I’m being cancelled. I was booked in the week after lock down started 😔

Can anyone suggest anything different for pain relief? I’m in constant pain at the moment it’s usually just with a flare up but this last few weeks have been agonising! I’m taking kapake for pain relief and using hot water bottles. It’s also started more around my bladder too so when I need a wee the pain is horrible and as I’m having a wee it’s like my bladder is almost cramping? Then eases off until I need a wee again. Same with bowel movements which before I have one can be excruciating. Does anyone else get this?

Thanks

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Topshopdreams123
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8 Replies

I had these pains for a long time sadly. The laparoscopy should help as it will free the endo from around your bladder and bowel. Try to keep moving as much as possible, which I know is really difficult when you are in pain, but the more active you can be the better. I wish I had a magic wand to fix it for you!

Topshopdreams123 profile image
Topshopdreams123 in reply to

Thank you so much! It’s so hard isn’t it when it becomes constant. I work full time in a busy nursery so it’s so hard when you can’t stop and take a minute x

Moon_maiden profile image
Moon_maiden

The pain nurse prescribed Tramadol last week. She said it works better for endo than codeine.

Topshopdreams123 profile image
Topshopdreams123 in reply toMoon_maiden

Thank you! I’ll try anything at this point. Do they make you drowsy? X

Moon_maiden profile image
Moon_maiden in reply toTopshopdreams123

I’m on 1 four times a day with paracetamol. Ok so far on not being drowsy, but it was a concern.

Are you on laxatives for the bowel, this may help with pain if you have constipation

Topshopdreams123 profile image
Topshopdreams123 in reply toMoon_maiden

I don’t suffer with constipation it’s more just when I need to go I’m in agony. Thanks I think I’ll speak to them about going on that xx

Moon_maiden profile image
Moon_maiden in reply toTopshopdreams123

I know that feeling, but have to take stuff as well currently.

Hopefully you won’t run into any issues.

Hi yes, I get this too. Pain when passing urine and sometimes after I have emptied my bladder too, it's a short sharp pain. Pain and bleeding while on my period - moving my bowels too.

I have scar tissue and fibrosis between my bowel and uterus. I'm waiting for my laparoscopy in Newcastle. I hope yours goes well. Prayers go with you.. God bless. 💛🙏🏻

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