Bladder pain with endometriosis

[Dorthy44]

Hello,

Recently I’ve been getting bad bladder pain, can’t seem to hold my bladder, pain after going for a wee and it’s been horrible pain. Had samples tested and everything is clear regards to a bladder injection. Has anyone had this connected with endometriosis before?

[Harpyiai]

Unfortunately, I do completely understand. Go and see your specialist and tell them how much it is affecting you. Make sure they listen to you girlie! Sending you all the love.

[Catness]

It can if you have endo on the bladder or if your pelvic floor muscles are dysfunctional. Here is a really good

Video all about how our pelvic floor can affect the muscles - it’s a video for people with interstitial cystitis but you may still find it useful! youtu.be/yZEaWoY2eJY(Not working as expected?)

[Missingcat]

I had problems leaking when I sneezed or coughed and with urgency. Urine was clear, slightly higher white blood cells in it. Turns out my (grapefruit) cyst was putting pressure on my bladder, haven't had those issues since it was removed.

[endokicker1]

Yes, bladder pain is very common with endometriosis. A lot of women with endometriosis also have painful bladder syndrome, also known as Interstitial Cystitis.

I recommend two books 'Beating Endo by Dr Iris Orbuch and Amy Stein' and 'The Interstitial Cystitis solution by Nocile Cozean'. They really explain how endo on the bladder can affect us, affect our pelvic floor and make us incontinent. I also read that you should reduce acidic and salty foods as they tend to aggravate it. Never hold your pee or strain when using the toilet. There are pelvic floor exercises that can also help your core. It takes time but there is hope.

I hope you feel better soon.

Xxx

[Dorthy44 in reply to endokicker1]

Thank you!!x

[Lejay]

I had the same thing and found out after my laparoscopic surgery it was because of endo on the bladder. I recommend avoiding any acidic foods or drinks including citris. Alcohol can be a trigger too. Take sips of water/fluids. Don't try and hold on too long to void your bladder because that can cause more pain (i found). Dont drink too much before you go to bed to avoid frequent loo trips during the night.

Before my endo diagnosis, when my synptoms first started a GP prescribed me Vesicare and then Betmiga because she thought my problem was tight pelvic muscles (which was a misdiagnosis). It sort of helped the urgency and pain/pressue (except around my period and when I had other triggers like lifting and carrying heavy things) but as I got worse they stopped working. I finally had my first lap 6 weeks ago and I've noticed a difference. But I am still staying away from citrus and being wary of my fluid intake.

Hope you find something that helps soon

[Avo123]

Hi. I also have started to get bladder symptoms. I feel like I constantly need to go to the loo, I'm always aware of a burning/discomfort in my bladder/vagina. It goes briefly after I have had a wee but sometimes 10mins later the burning is back and I feel like I need to go again. It's driving me insane! The GP did a urine test but it came back fine, no infection. I had my 1st laparoscopy about a year ago and had stage 1 endo on my appendix and in my pelvis. Maybe it could be endo growing back? Have you had much luck with your investigations?