Weight loss and endo: Hi seeing if anyone... - Endometriosis UK

Endometriosis UK

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Weight loss and endo

mgzrrover7 profile image

Hi seeing if anyone can help. I was diagnosed about 10 years ago. I've been on zoladex and hrt for about 2 years now, I've recently had a scan to see if it shrunk any of it, sadly it doesn't seem to have as the wording in my letter was there is no significant change from my last scan, gutted to say the least, but also not surprised as I have stage 4 and it's on my bowel bladder and kidneys. No matter how hard I try I can't seem to lose any weight, I worry if they need to operate they will ask me to lose weight, I weigh just over 15stone. I was 10stone before I for this awful disease. Has anybody any hints and tips on losing weight please. TIA

Lisa xx

11 Replies

Hi Lisa,

Hope you are keeping well. Sadly I am on the same boat as you and I am keen to hear other people experiences as well. The standard formula of eating well + exercise does not seem to work for me that well. Just wanted to share to let you know that you are not alone. X

mgzrrover7 profile image
mgzrrover7 in reply to Bespp

Thank you, its nice to know I'm not alone, I'm doing bounce fitness, and am currently trying fasting, but whatever I seem to do nothing goes, I was thinking my weight is also due to the weight of my endo and scar tissue, but I don't think it is. It really gets me down as before I go this I was size 10 now wearing size 16 clothes, and absolutley hate it. Especially like I say nothing I do changes my weight, but hearing other stories it is possible, maybe I need to be more firm with myself, but everyday it's so depressing xx

Hi

I feel for you as I too struggle with my weight. I have managed to lose 2st in 2 years and it has been a huge learning curve. I found a wonderful nutrionist who has been so supportive. By finding her I set myself up with taking charge of my weight. I have also tried different diets by reading health magazines and helpful tips by the nutrionist. I still have a long way to go with my weight loss. I hope you have found this post supportive on your journey.

mgzrrover7 profile image
mgzrrover7 in reply to Decode

Thank you for your reply, it is really depressing and really hard, maybe I need to be more consistent, and try harder, I am currently doing a fasting and doing bounce but nothing goes xx

Hi Lisa I don’t think Zoladex shrinks endo, it just stops it from spreading (pauses it) and you have to be on it for a long time.

With losing weight, I was diagnosed as type 2 diabetic 6 years ago, on top of endo. Although awful, it was the best thing that happened because it forced me to change my diet to low carb. And within 6 months, I’d lost a stone without even realising and I’m maintaining that weight and feeling so much healthier.

My point is, I didn’t make too many changes, just more home cooking and less takeaways and ready meals. I added more meat (or protein) and piled the veg on to feel more full because I was cutting down on the carbs. And I tried to do 10k steps a day. This, as you may have realised is a standard, healthy balanced diet and nothing faddy or special.

mgzrrover7 profile image
mgzrrover7 in reply to Moonglo

Thank you for your reply, I was told by UCLH that it shrinks it, but knowing my scan results and generally the way I feel when it's due to be renewed I didn't think it had. I am currently trying a fasting and slim fast (with water) and bounce classes which I really enjoy, but nothing is dropping off, maybe I need to be more strict with myself, and do what you have done more, it's just awful xx

Moonglo profile image
Moonglo in reply to mgzrrover7

I’ve been on Zoladex for 6 years (shhh don’t tell anyone), approved by the UCLH team too! My chocolate cyst has definitely shrunk, but I’m not sure about the endo itself.

Good luck with the diet, although for me that sounds like pure misery and I’d be starving all the time :-D It has to be something you enjoy doing as that’s the only way to keep it up. Xx

mgzrrover7 profile image
mgzrrover7 in reply to Moonglo

I won't tell anyone, this is the only reason why I had an mri, as the nurse was concerned with the length of time I've been on it. I'll find out in May what their plan is. Hope everything works out for you. Xx

Moonglo profile image
Moonglo in reply to mgzrrover7

I’ve been having regular dexa scans. It’s good that your team are looking after you. In the meantime, don’t lose heart with your weight loss, just be kind to yourself x

mgzrrover7 profile image
mgzrrover7 in reply to Moonglo

Yes me to which have all come back fine so that is good. Same to you look after yourself x

Hiya when I found I had endo the thing what worried me was I was always bloated I actually thought it was just fat so started dieting as it didn’t bother me pain wise.I started with the endo diet and also did fasting and went from a size 14 I’m now a 6-8 and I’ve probably ended up loosing too much but I’ve kept it off not purposely I would like to be a size 10 now and put a little bit on I feel too thin now. I can only say that I’ve gone down this much due to not eating carbs as much unless it’s protein based like porridge and followed a gluten and diary free diet less meat and more fish lots more fish compared to meat and less meat on my plate when I do have it about 5 veg only eating pasta now and again no processed foods and I do eat rice and organic things as endo diet suggests the diet is very very strict but you get used to it and actually the cooking part is not bad because you can batch cook.funny enough I don’t bloat anymore either wish you all the best

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