Endo and weight problems

[Laurab82]

Just been diagnosed with endometriosis after years of suffering. Can anyone tell me if they struggle to lose weight as a result of the condition and if there is anything I can do to help

Thankyou

[Ashley1234]

I've just been diagnosed and in the last few months I've put on 20lbs. I'm a marathon runner so Some of it might be muscle but in general it's adding to my depression. I can't seem to shift the weight despite being vegetarian and running a lot. Not sure what's going on either:/ apart fro Hormones let me know if you find anything xx

[Laurab82 in reply to Ashley1234]

It's awful ain't it !!

[Ashley1234 in reply to Laurab82]

So annoying! It's really just another thing makes me Feel like rubbish

[Laurab82 in reply to Ashley1234]

I'm the same. If it isn't one thing it's another with this condition

[Ashley1234]

I know what you mean. Personally I feel like I can't win. :/ extra hormones don't help- well for me anyway- they make me feel so low and more insecure about everything! I want to be -20lbs again and - minus the pain etc! here for you too moan at xx

[Laurab82]

I need to lose stones and with everything else it just isn't happening. Hormones are the devil xx

[Croydebay]

Yes me too I eat very healthy as exercise regularly and don't seem to load anything so depressing what else can we do! In adamant it affects your weight! Such a nasty condition I really hope someone finds cure soon to stop all is lovely ladies from suffering x

[confusedandworried]

Yep me too.

I used to be a size 6-10. Then this disease, the pill and other hormone treatments saw me shoot up over the years to a size 16-18.

I finally got it under control with the help of a naturopath, nutritionist and personal trainer but could only ever get back down to a size 10-12 with the added benefit of my endo symptoms being manageable with not anything more than paracetamol.

Sadly life, stress, lack of excercise and poor diet took over again after 5 years of being stable and the weight piled on again with endo and now Adeno symptoms taking over and no amount of getting back to a healthy routine worked despite trying for year so off I went to see an endo specialist.

I am now almost 4 months post op from major excision surgery for endo and a total hysterectomy for the Adeno.

I'm active (I wear a pedometer to make sure and I average 12500 steps a day), I eat healthily and the weight will not come off.

I saw the nurse at my Doctors surgery and showed her what I eat during an average week and my daily exercise routine and she couldn't do anything saying it was just probably genetics! The doctor said the same and wouldn't refer me to a dietitian as he said I wouldn't be considered overweight enough for the NHS to deal with me despite being clinically obese at the size I am! It's so frustrating when I am so committed to losing weight because I know the health benefits particularly for my endo make it worth while yet the weight will not budge 😡.

So I've gone to see a dietitian privately. She thinks it's the endo / hormones that caused the weight gain in the first instance but also feels it's still too early from surgery, I'm still healing. She wants to try re-starting my metabolism by getting me slowly to increase my food intake from my usual 1200 calories to 1500! She also wants me to eat a banana about an hour before bed. Both of these ideas worry me as it goes against what worked so well last time and I'm worried increasing my food & especially eating so close to bed time will increase my weight further (I was always told not to eat for 4 hours before bed and stick to this!). However I guess I have to give it a go as what I have been doing isn't working😒.

I know I'll never see a size 6 again in my wardrobe but how I long for those days....

[kt20]

This, for me, is the worst symptom of endo. 5 years ago (when I was 16) I lost 8 and a half stone through healthy eating and exercise and was proud as punch of it. I am 5'7" and was wearing size 8-10. Over the past two years I have put on two stone, despite eating 1200kcal/day, playing golf 3 times a week and walking 1.5 miles to and from university everyday. I found that my wait increase became completely out of control when I starting on the depo provera injection and I came off it after 3 injections (it is the devil in my opinion!) however I have now been off the depo for 2 months and there has been no weight loss and I still haven't had a period, just brown spotting for a few days. I think physicians need to do a lot more to help us control our weight as most of us suffer some extent of depression due to endo and do not need low self esteem on top of that. I had my laparoscopy 2 and a half weeks ago and the pain has reduced significantly so I'm hopeful that in the coming months my weight might start to decline also.

Don't let it get you down!! 😘