Hospital : Soooo last night I collapsed and... - Endometriosis UK

Endometriosis UK

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Hospital

Love_Yellow profile image
14 Replies

Soooo last night I collapsed and passed out in pain and my 7 year old son was panicking because he didn’t know what to do. I could hear him crying and panicking but I couldn’t open my eyes or respond😭

I then came round after about 10 minutes and called 111. They sent a ambulance within 18 mins.

I hospital I have been told the LAP I had in October was just to diagnose not take the endometriosis out. I also have also cysts on my ovaries.

I know need another referral and got through it all over again.

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Love_Yellow profile image
Love_Yellow
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14 Replies
Whoisthis profile image
Whoisthis

Oh you poor think are you home safe now? Where in the Uk are you and where was the lap done. Hope you can rest today x

Love_Yellow profile image
Love_Yellow in reply toWhoisthis

I’m home safe thank you.😊

Love_Yellow profile image
Love_Yellow in reply toWhoisthis

I live in the North East, where in the body or where in the north east? Sorry x

Whoisthis profile image
Whoisthis in reply toLove_Yellow

Where in the UK, it’s just as lots of people on the board know of good surgeons in different areas, so can hopefully point you in the right direction. Have a look for surgeons that do excision surgery on endo. X

Love_Yellow profile image
Love_Yellow in reply toWhoisthis

In Middlesbrough (North East) x

Whoisthis profile image
Whoisthis in reply toLove_Yellow

bsge.org.uk/endometriosis-c...

Try here and then look at your local Spire / Endo centers on the NHS, the main issue with the NHS is they refer you locally and sometimes the hospital you get referred to doesn't have the right specialist for your condition it really is a postcode lottery – You can find the surgeons that do excision, no laser – and ask your GP to refer you to the best in your area.

if you have time do your research and ask for what you want:

What it says in the NHS Constitution is that you have the right to choose your hospital and the consultant-led team that treats you. And if they can’t treat you within the timescale set out then they need to find another option for you. It is a legal right, and patients need to know that.

XX

SarahMow profile image
SarahMow in reply toLove_Yellow

I’m from the North East too. The RVI is a specialist centre x

Love_Yellow profile image
Love_Yellow in reply toSarahMow

Thank you so so much SarahMow.

How do I go about going there?

Does My GP need to refer me?

Does JCUH not treat Endo just diagnose?

I am so glad we have all this support because with our this site I would be lost.💛

SarahMow profile image
SarahMow in reply toLove_Yellow

Yeah just get your doctor to refer you, that’s what I did! If you go on their website you will see which ones specialise in endo (not sure if I can mention names hence why I’m not)

I don’t know about JCUH, just know that the RVI is brilliant and worth a try! The waiting times aren’t bad either, you see on here people waiting months and months and months but it’s only a few weeks wait there x

Love_Yellow profile image
Love_Yellow in reply toSarahMow

Thank you so much SarahMow. I will definitely have a look and give my GP a call tomorrow x

Afrohair profile image
Afrohair

Hello lovely I’m so sorry to hear this and the pain you have been through please ask your g.p for a referral to an endometriosis specialist I hope your little boy is okxx

Love_Yellow profile image
Love_Yellow in reply toAfrohair

Thank you Afrohair.

I will be definitely be asking my GP tomorrow.

He is okay he was a little scared been left on his own with me in case it happens again we have had a chat to him and he’s okay now. He is so brave💙 xx

Afrohair profile image
Afrohair in reply toLove_Yellow

Oh such a solider it’s hard to explain when their so small glad he’s ok x

Love_Yellow profile image
Love_Yellow in reply toAfrohair

I know, he’s my little Hero💙 x

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