First appointment with endo specialist but GP has worried me!

[Hlous]

After two years of getting nowhere I’m hoping my appoint with an actual endo specialist will finally lead to a diagnosis and a plan. I wasfobbed off by a general gynae who, as I’ve said on here before, said that because the mirena hadn’t stopped my pain then it can’t be a gynae issue. This was despite me explaining the cyclical pattern of pain. Many more fob offs by GP’s but yesterday I saw one who listened and agreed that I need to see someone who knows what they’re talking about and recommended seeing a consultant who works at BSGE centre but also does private work. Great news and appointment made. However, he that he might put me on zoladex or prostap as a first plan of action which terrifies me! Is this what tends to happen? I was hoping for a laparoscopy. Hormone treatments scare me because I had very bad postnatal depression which lead to anorexia and I can’t go there again.

[Busy-Lizzie]

Hi there

The GP is only surmising what the specialist may say. I would suggest going to the specialist appointment with an open mind. The specialist won't make any decisions without involving you fully in them.

Some specialists prescribe a short course of Zoladex/Prostap prior to laparoscopy to make surgery a bit easier and to ease symptoms beforehand. But usually only in women who are not prioritising fertility.

You can express any worries you have with the specialist.

I recall being offered 3 months' Zoladex before my first laparoscopy to make surgery easier. I was worried about it and said no. However, about a year after my 2nd op I did opt for Zoladex. People have very mixed experiences of it.

Good luck with your appointment.

[Hlous in reply to Busy-Lizzie]

Thank you for your reply. You’re right, I’ll keep an open mind and see what he actually says rather than second guessing!

[LCI1]

Hi,

Has the G.P. been able to give any indication how long it will take to be seen at a specialist centre?

LCI1

[Hlous in reply to LCI1]

I’m seeing the consultant privately so I managed to get an appointment this week.

[LCI1 in reply to Hlous]

Is that still through a specialist centre with a multi disciplinary team or just a private practice?

[Hlous in reply to LCI1]

It’s just at a Nuffield hosp so I’m guessing that if I needed a MDT I’d have to go NHS. At this point in time I’m just glad to be able to see someone who knows what they’re they’re doing.

[LCI1 in reply to Hlous]

Okay thanks - I have had a lap at a BMI hospital which was meant to be to remove an ovarian cyst however severe endometriosis so this didn’t happen. Back to see consultant so been doing a bit of research into what my next steps might be.

[Hlous in reply to LCI1]

Hope you get sorted out soon. Best of luck. X