Got a cancellation appointment to see end... - Endometriosis UK

Endometriosis UK

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Got a cancellation appointment to see endo specialist this Wednesday ๐Ÿ˜

โ€ข16 Replies

Hi ladies.

I was offered a cancellation appointment for this Wednesday to see the endometriosis specialist; I will be given full details Monday morning before work ๐Ÿ˜

Iโ€™m not sure what to expect ; Iโ€™ve had two laps within around 8 months ; endo removed from POD and some left on rectum ๐Ÿคขwhich fertility specialist says needs an endometriosis specialist that works alongside a bowel surgeon.

Anyone who has been to an endo centre and has advice to offer would be much appreciated. xoxo

16 Replies
โ€ข
foursimplewords profile image
foursimplewords

have you looked at the consultation questionnaire on the endo uk website x

โ€ข in reply tofoursimplewords

No I havenโ€™t I think I might have a look. Thank you xoxo

RicEndoUK profile image
RicEndoUKโ€ข in reply to

Hi jess1981,

You can find the questionnaire here:

endometriosis-uk.org/sites/...

Hope this helps and good luck!

RicEndoUk

Volunteer Moderator

โ€ข in reply toRicEndoUK

Thank you that is very helpful xoxo

AllWeNeedIsluv profile image
AllWeNeedIsluv

Brilliant news lovely. Hope all goes well ๐Ÿ’–๐Ÿ˜˜

โ€ข in reply toAllWeNeedIsluv

Thank you. Really happy to be moving forward ๐Ÿ˜ xoxo

AllWeNeedIsluv profile image
AllWeNeedIsluvโ€ข in reply to

Im not surprised it's good that things have got moving so quick after they didn't hear of you. Good luck on Wednesday hun ๐Ÿ˜˜๐Ÿ’–

โ€ข in reply toAllWeNeedIsluv

Congratulations on the scan; fabulous news. Really pleased itโ€™s going well you deserve it after everything ๐Ÿ’•๐Ÿ’•๐Ÿ’• xoxo

AllWeNeedIsluv profile image
AllWeNeedIsluvโ€ข in reply to

Thanks hun ๐Ÿ˜

Hopefully once you've had this endo sorted out looks like it's going to be sooner rather than later, you can get back on the road to having a ๐ŸŒˆ ๐Ÿ’–๐Ÿ˜˜

โ€ข in reply toAllWeNeedIsluv

Thank you. Definitely feels positive ๐Ÿ˜˜xoxo

luthien profile image
luthien

I've just had my appointment with my specialist regarding having my endo removed from my colon - had a previous lap to remove all other endo 4 months ago. Mine was really helpful, he didn't recommend surgery immediately as my symptoms have improved; however he did say he would be 1/3 in favour of doing the surgery to get rid of all endo considering I still have some symptoms, 2/3 against (1/3 being it's more invasive - another surgeon required, and 1/3 because my symptoms have improved). So if I opted for it he would understand. I guess you could ask that sort of thing.

My hubby and I went home and talked, we decided as we're not planning but not preventing; just enjoying a healthy sex life, and whatever happens happens, we'll get as much endo removed as possible so we know were we are. I've emailed my specialist mentioning that with a possibility of having an op in June / July, as it takes time to book both surgeons. I am waiting for his reply.

I know all the above may not be relevant however I'm hoping it helps you think about your appointment xx

โ€ข in reply toluthien

That is helpful to know how it all works.

Weโ€™ve been ttc 6 years 8 months; it took nearly 6 years to find the cause; yep endo was found and treated in June last year and we conceived ( first time ever) but I miscarried and endo returned; Iโ€™ve been told by my fertility specialist Iโ€™m prone to it recurring ๐Ÿคฆ๐Ÿผโ€โ™€๏ธ like you most was removed but some left on bowel area.

Your op sounds similar to what mine might be; with bowel endometriosis you need a bowel surgeon present .

ill have to see whatโ€™s what when I see him.

Hope you hear an from him ๐Ÿ˜˜ xoxo

Tillyfloss profile image
Tillyfloss

hi. That's brilliant news you should find it so helpful, I felt someone finally understood what I was talking about I nearly cried with relief!! I found it helpful to write a time line of what had happened up to that point which he seemed to find useful and kept to discuss with the other surgeons.

hope you have a really positive appointment and you come out with a plan.

xx

โ€ข in reply toTillyfloss

Thank you.

My fertility specialist has been very supportive but I do need an endo specialist to look at this.; itโ€™s their area. ๐Ÿ˜

I will be doing that thank you ; I want to be as prepared as possible. Great tip ๐Ÿ˜˜ xoxo

Itโ€™s great news that you have an appointment so soon xx

โ€ข in reply toLizzielizzielizzie

I know Iโ€™m so lucky. Thank you hope the pregnancy is going well xoxo

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