This Thursday (18 April) I finally have my first meeting with an endo specialist at UCLH, and I was hoping some of you could give me some advice about what to ask etc, as I'm a bit worried!
To put my case into context - as I've found from being on here that there are so many different types and symptoms, for over a year I've had symptoms of excruciating pains during sex, and bad pains when I take a break from my pill. I finally went to the doctors about it, and eventually got refereed to a gynaecologist.
In January I had one of those horrible prob-ey examinations, and after almost an hour of being examined the gynae found (and showed on the ultra sounds machine) what she thinks is a recto - vaginal endo node. After she found it, all I was told is "oh its probably endometriosis", I was like...ok (having never heard of it) so I asked - so how do I get rid of it? she shrugged and said "oh, surgery" I was somewhat shaken up, and asked if it could be effecting me badly in other ways, and she just shrugged again and said "your fertility"
That's all I got! So for a 26 year old it was..disease I haven't heard of, surgery and possible fertility in one quick conversation...followed by have a nice day!
I went to see a GP to ask for more details, but unfortunately he wasn't an expert so just re-assured me that I'll be fine, and to prepare questions for the endo specialist.
But...my appointment is now two days away and I'm a bit stuck on what I should be asking, what I need to know - my GP told me that you have to often pry information out of specialists, but I don't know what I need to know so don't know what to ask!?!
I've spoken to people about having a Lap, which sounds terrifying, but necessary, and I'd much rather have node removed than keep it, but do any of you have any suggestions or recommendations?
Any advice would be very appreciated!
Thanks in advance,