WARNING, probably too much information but really worried.

[Peoni]

I have endometriosis stage 4, been on prostap for 17 days, I have not felt well since I had the injection. Flu like symptoms.

This morning whilst showering I discovered 3 hard lumps around my vagina, theres one hard and painful, pea size, then a red raised line leading to 2 more that are together.

I'm fighting back tears as I write this, I am so fed up.

I was wondering if any of you know what this is or have had the same problem.

It's quite embarrassing but I feel like I have no one to turn to.

[JeanOsborne]

Hi hun, I would give you go a call or even 111. You need to get the lumps checked out.

[Peoni in reply to JeanOsborne]

Thankyou JeanOsborne. I will try to see someone today.

[JeanOsborne in reply to Peoni]

Please let me know how you get on. Xxx

[Peoni in reply to JeanOsborne]

Hi, I managed to see a nurse at the surgery, she had a look then called the doctor, they didnt really know what they are, I have never had a std and I know that my partner doesn't sleep around.

The nurse took my bloods the gp said to do them as urgent, I'm assuming that they are ok as I have not heard anything back.

I did receive a text message from the surgery off my gp saying that all of my symptoms are side effects of prostap and if they dont settle she advised that I dont have any more and to get in touch with the endo team.

I'm a little frustrated that there seems to be a gap in support in regards to prostap, it would be nice if I could of spoke to someone at the endo clinic just to find out if all of this is normal.

I have never felt so poorly, 3 years ago I had myocarditis and I never felt as ill as I do now.

Sorry I'm just feeling sorry for myself xx

[JeanOsborne in reply to Peoni]

Oh hun. The lumps won’t be a side effect of the injection.

Have you not been given the phone number for the endo nurse?

[Peoni in reply to JeanOsborne]

No they never gave me the number, I had to find it myself, i called and told my consultants secretary the problem and asked if I could speak to the endo nurse, she said she would email her and ask her to call me.

I've not had a call yet. x

[JeanOsborne in reply to Peoni]

Keep trying hun.

[Peoni in reply to JeanOsborne]

Thankyou for your support

[Afrohair]

Is this on your bikini area?ive had a similar thing I’ve got no where with gp they said I will have another ultrasound I’ve seen two g.ps and not any closer to any info I keep thinking it’s to do with endo

[Peoni in reply to Afrohair]

They are just near the opening of my vagina.

I'm starting to think it's to do with endometriosis, they said that I would probably have a flare up in the first few weeks of prostap, I cant help but think I have endo around my vagina.

I'm hoping I am wrong.

It's strange how they have only just appeared.

[Afrohair in reply to Peoni]

Ive has lumps and bumps appear but the g.p don’t always look unless you put your foot down if they do say it’s nothing I got told mine was a gland but it’s been their years they could be little cysts I’ve heard people have them at the opening and they can flare up when endo flares I have heard of this try not to worry unless it Dosent go in a few weeks to ease your mind you could book in with a nice lady nurse instead of a g.p just say you want a lump looking at and your concerned they will refer you for more tests if it goes you can cancel the appointment

[Peoni in reply to Afrohair]

Thankyou Afrohair, its just constant this disease, some days I dont have the energy to fight it.

Today is one of those days, I just feel useless, I feel bad on my family as I am either crying or moaning about pain.

I feel so guilty.

[Afrohair in reply to Peoni]

I know what you mean I’m same always crying and wanting to get better life’s been unfair lately but I have to keep going stay strong x