WARNING, probably too much information bu... - Endometriosis UK

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WARNING, probably too much information but really worried.

Peoni profile image
13 Replies

I have endometriosis stage 4, been on prostap for 17 days, I have not felt well since I had the injection. Flu like symptoms.

This morning whilst showering I discovered 3 hard lumps around my vagina, theres one hard and painful, pea size, then a red raised line leading to 2 more that are together.

I'm fighting back tears as I write this, I am so fed up.

I was wondering if any of you know what this is or have had the same problem.

It's quite embarrassing but I feel like I have no one to turn to.

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Peoni profile image
Peoni
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13 Replies
JeanOsborne profile image
JeanOsborne

Hi hun, I would give you go a call or even 111. You need to get the lumps checked out.

Peoni profile image
Peoni in reply toJeanOsborne

Thankyou JeanOsborne. I will try to see someone today.

JeanOsborne profile image
JeanOsborne in reply toPeoni

Please let me know how you get on. Xxx

Peoni profile image
Peoni in reply toJeanOsborne

Hi, I managed to see a nurse at the surgery, she had a look then called the doctor, they didnt really know what they are, I have never had a std and I know that my partner doesn't sleep around.

The nurse took my bloods the gp said to do them as urgent, I'm assuming that they are ok as I have not heard anything back.

I did receive a text message from the surgery off my gp saying that all of my symptoms are side effects of prostap and if they dont settle she advised that I dont have any more and to get in touch with the endo team.

I'm a little frustrated that there seems to be a gap in support in regards to prostap, it would be nice if I could of spoke to someone at the endo clinic just to find out if all of this is normal.

I have never felt so poorly, 3 years ago I had myocarditis and I never felt as ill as I do now.

Sorry I'm just feeling sorry for myself xx

JeanOsborne profile image
JeanOsborne in reply toPeoni

Oh hun. The lumps won’t be a side effect of the injection.

Have you not been given the phone number for the endo nurse?

Peoni profile image
Peoni in reply toJeanOsborne

No they never gave me the number, I had to find it myself, i called and told my consultants secretary the problem and asked if I could speak to the endo nurse, she said she would email her and ask her to call me.

I've not had a call yet. x

JeanOsborne profile image
JeanOsborne in reply toPeoni

Keep trying hun.

Peoni profile image
Peoni in reply toJeanOsborne

Thankyou for your support

Afrohair profile image
Afrohair

Is this on your bikini area?ive had a similar thing I’ve got no where with gp they said I will have another ultrasound I’ve seen two g.ps and not any closer to any info I keep thinking it’s to do with endo

Peoni profile image
Peoni in reply toAfrohair

They are just near the opening of my vagina.

I'm starting to think it's to do with endometriosis, they said that I would probably have a flare up in the first few weeks of prostap, I cant help but think I have endo around my vagina.

I'm hoping I am wrong.

It's strange how they have only just appeared.

Afrohair profile image
Afrohair in reply toPeoni

Ive has lumps and bumps appear but the g.p don’t always look unless you put your foot down if they do say it’s nothing I got told mine was a gland but it’s been their years they could be little cysts I’ve heard people have them at the opening and they can flare up when endo flares I have heard of this try not to worry unless it Dosent go in a few weeks to ease your mind you could book in with a nice lady nurse instead of a g.p just say you want a lump looking at and your concerned they will refer you for more tests if it goes you can cancel the appointment

Peoni profile image
Peoni in reply toAfrohair

Thankyou Afrohair, its just constant this disease, some days I dont have the energy to fight it.

Today is one of those days, I just feel useless, I feel bad on my family as I am either crying or moaning about pain.

I feel so guilty.

Afrohair profile image
Afrohair in reply toPeoni

I know what you mean I’m same always crying and wanting to get better life’s been unfair lately but I have to keep going stay strong x

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