I am need of some much needed advice and maybe some guidance from you!
I am a 26 year old girl, who was diagnosed with stage 4 endometriosis in February 2015 (day before my 22nd birthday) and had laser ablation surgery in July 2015 - endometriosis was found in my left ovary, rectum and at the top of my vagina. I am aware now that 'excision' surgery would've been best.
I was advised by my endometriosis CNS to go on to contraceptives which I did and have been on ever since. I refused both the coil and the injection as I wanted to still have some control over what I put into my body - and read some horror stories!! I have been on both the combined and POP pills over the years but I'm now at a point where I'm fed up with taking them!
I currently take norethisterone (350 MCG) x2 pills a day (on consultant instructions).
I'm experiencing mood swings, feeling low, weight gain, thinning hair and I'm BLEEDING! I bleed as if I'm having a menstrual cycle monthly and yet I'm taking the pill back to back! I'm cramping, passing clots etc and feeling like a zombie (the pain stops me from sleeping).
So I plan to just stop taking them today! Has anyone just stopped taking the pill? Did you bleed out for ages or did it stop? I haven't had a 'real' period in 4 years!
I'm also very aware of the fertility aspect of endometriosis and wanted to know if it was better I tried now or waited (I'm in amazing relationship with a supportive boyfriend) so we've talked about babies etc.
When I spoke to my CNS about this she simply said you don't have to try right now but she wouldn't advise me to wait too long either - which I found elusive.
My mum is keen for me to try now as she doesn't want me to regret it later on but I don't know.
I don't want this disease to rob me of my heart's desire - motherhood.
But I don't want to be in pain!
PLEASE HELP 😥 (so sorry its so long)