After all the media coverage today on endo , I feel quite emotional. As silly as that sounds. My grandma had a hysterectomy in her 30s with endo and the family line have continued to have this surgery so early on in their life & I remember chatting to her the other day saying that medical advances for endo hasn’t moved on since she was my age . I feel today might be the start of that change . And I feel overwhelmed in such a positive way that maybe we might get a little bit of control over this condition.
I just wanted to say a big Thankyou for every single person that has given me support & offered me words of wisdom , when I felt so alone !
Here’s to us ladies 💛💛💛
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Lucy_x
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What a lovely post. I’m currently going through the diagnostic process for suspected Endo. So inspired by the amazing, brave ladies on here sharing their stories. X
I’m right there with u Lucy💖 There was a petition the I missed a few years ago cos they did not have enough signatures to regards this as a disability! We women want to be independent and live our lives but we also need the support if we can’t.
This has made my day!! Just had a lap few months ago n now they telling me something else has come up and the cyst is back in 2 months!
When I had an op in 2005 they cleared it properly. They shud be more advanced now not ten steps back way. Anyway I hope they do something positive to actually help us and not experiment on us!
Exactly !!!! I’ve seen generations of women in my family go through this pain & now myself also! I just hope that if I’m lucky enough to have children , something will be available to have a life that isn’t debilitated by this disease !
I woke up to this amazing news today. To find out I wasn't alone is amazing. My female bosses where horrible to me, so with my union rep I negotiated a leave package. I almost felt like emailing her the link today to say look I wasn't imaging it x
I hope she’s seen the news today & thinks of you ! I’ve found sometimes women can be the hardest to sympathise with the pain , because if they’ve not got it , they sometimes can’t seem to understand it ! You keep going girl ! Xxx
I fainted at work on a number of occasions and she complained she had to write a health and safety reports......
Then a new girl started, who had endometriosis and they were so supportive of her and I was treated like dirt, even though I had worked for company for close to ten years.
Yes it really was case of face fitting in. When I got pregnant by IVF I was told to not rub it in the other girls face and hide it from her and not boast about it...... How can you hide a pregnancy?.....
They didn't even notice I didn't speak to her, because she had been so rude and nasty to me. ...
Thank you, the stupid inconsiderate thing was she was always going on about her menopause symptoms......
I feel lucky because I have wonderful 3 year old son from IVF and then last year I had a full hysterectomy, so now I am going through the menopause. I don't miss periods at all..........I can finally live again x
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Hospital notes 
A really bad experience 
Bit of a long one.. need advice!
What contraception works best for pain ? 
