Pelvic/ back pain like something is going to explode

[Disneynala]

Hi

I’m currently waiting for surgery to remove endometriosis. I have chocolate cysts in both ovaries and my ovaries are kissing. The back of womb is also stuck to my bowel. I’m extremely worried I have no children yet but i am desperate to have a child as soon as I have had sugary even though i know the possibility might be that I can’t. I don’t know how long I will be waiting for surgery knowing the nhs.

I’m really suffering with right pelvic pain and lower back pain atm nothing seems to be helping it and it kind of feels like something might explode on my right side where all the pain is, it’s like pressure pain of some sort it feels like it’s blowing up. I was just wondering if this is normal specially with chocolate cysts or kissing ovaries. I’m on the pill and I take naproxen and paracetamol I have water bottles I just don’t know what else I can do.

[JulesUK]

Can your doctor out any pressure on to get a date for your surgery? When I had large cysts on my ovaries I ended up in A&E in middle of the night and then emergency surgery to remove them. (I didn’t know at the time I had endo until they did that lap). They are incredibly painful and there is a very small risk of them rupturing. It’s wrong to leave you in so much pain waiting.

[Disneynala in reply to JulesUK]

My gp is a bit useless to be honest I had to make him refer me to back to the consultant I saw privately who works both on the nhs and privately. I will just keep going back to my gp to try and see if he can push it on a bit. I will email the consultants private secretary and see if she can do anything too even though she probably only deals with private clients but it’s worth a try.

Yeah I have cysts on both ovaries they measured at 3.5cm but I don’t know if they have grown bigger since December. I am going to do everything I can to try and push this surgery I’m just so uncomfortable and it hurt all the time just fed up.

[JulesUK in reply to Disneynala]

It’s so frustrating isn’t it. The part I didn’t mention is that when I was in A&E the doctor told me my cysts had grown then told me to go home. It was only because I burst in to tears and the nurse said if the pain was unbearable she’d see if the hospital had a bed for the night. When they called to check, the hospital said I had to go in for an emergency operation. As the years have passed I’ve realised that you have to be extremely assertive to be taken seriously. It’s your body and to them you are just a number. My guess is they had grown, mine had grown very quickly between a scan and that incident. I hope you can get things sorted soon. Keep knocking on doors and pestering them which sadly isn’t what you feel like doing when you are so ill but sadly seems the only way forward.

[Disneynala in reply to JulesUK]

Thankyou for your advice I will definitely keep on to them x