Life ruled by pelvic pain? : Random... - Endometriosis UK

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Life ruled by pelvic pain?

Heartof3 profile image
Heartof3
β€’27 Replies

Random question, but does anyone notice that lifting anything slightly heavy causes an endo flare?

For example: if i carry shopping bags then i will be in pain after 😞

It's like any activities instantly go to my pelvis & I'm paying for it after πŸ˜–

I can't drink fizzy or alcohol. Can't eat anything too sugary. Can't have sex. Can't exersise. I even have to watch how i sit as i can litrally feel my pelvis seeze up if i slightly slump. I Can't even pick my child up πŸ™„

My life is ruled by this pelvic pain πŸ˜₯😒

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Heartof3 profile image
Heartof3
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27 Replies
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Purple_Badgers profile image
Purple_Badgers

Ugh, yes. 😞 I recognise all of this. I had a good laugh yesterday about something very random (probably from exhaustion & hysteria!) and I was holding my belly because it was pulling & hurting. I’m having to accept my new limitations and hope that I will feel some improvement after surgery/treatment. If you have trouble getting comfortable to sleep, can I recommend a body pillow… just bought one and it was bliss curling up with it last night! Supports everything πŸ˜€ Sending hugs πŸ€— xxx

Heartof3 profile image
Heartof3 in reply to Purple_Badgers

Bless you. It's unreal how nasty this disease is πŸ˜₯ I'm going to look that pillow up now! Thank you. Seding hugs to you too ❣

Daisy0909 profile image
Daisy0909

Going through this right now and I’m so fed up of being on constant pain, nothing works anymore and it’s starting to get me down 😩 I really can sympathise with you ❀️

Heartof3 profile image
Heartof3 in reply to Daisy0909

I hear you 😒 it's litrally a controlling nasty Bully πŸ˜– xx

RainorShine92 profile image
RainorShine92

Hiya, I have just come on to ask the same thing and came across your post. I am in bed with a heat pack around my hips and lower back wishing I could be normal. I feel like I have been put in a vice. my lower back, and hips are agony. I cannot stand straight or walk properly. If I do too much walking, cleaning, hoovering, bending over/down, sitting for too long I get hip, back pain and stabbing/shooting, deep aching vaginal and rectal pain along with the usual abdominal pain. I want to be able to go to work and feel ok ay with the kids and clean my house like I used to (a tad OCD ). I can barely put a wash on these days. Vent over. x

Heartof3 profile image
Heartof3 in reply to RainorShine92

Vent away Hun. It's so shit isn't it 😞 I'm the same with the ocd but starting to give up being on top all it all now as it's not worth being in this much pain. It litrally has to get involved with anything we do, it's not fair is it 😞 xx

Peenie123 profile image
Peenie123

I’m the same with neck abs back which also affects pelvic pain/ have to minimise what I do, have to sit square on to my desk with my head being turned to the side in a meeting, training course otherwise everything gets buggered up. Have difficulty standing fir more than 20 mins at sons football matches or at the oven cooking. Frequent visits to.m chiropractor, use hot water bottle abs microwave neck cushions - miserable, really limits enjoying life :-( xx

Bengalni profile image
Bengalni

I feel you,, im a gas engineer and can no longer lift anything over 7kg without sever pain, had to have a doctors note for work, its a struggle but im managing it, not sure if your the same but if i crouch for more than a few minutes i get sever pain, bleeding out of no where its horrible ☹xxx

Heartof3 profile image
Heartof3 in reply to Bengalni

Oh Bengaln 😞 it's awful isn't it. Yep, I'm the same with crouching & bending too long, it's like it all seezes up in my pelvis & I'm left with almost like sciatica deep in my womb πŸ˜– is that how it feels for you?

I'm lucky in a sense of the bleeding though, I'm often regular and not too heavy. It's just constant pains that's reved up at ovulation 😞 xx

SasF profile image
SasF

Me too, especially mid-cycle. Like you, I have found there are triggers and so I try to avoid them. I'm a writer and therefore I spend hours sat in the same place which certainly doesn't help. I've looked at my diet too. I'm fairly healthy on the whole, but there are certain foods which make that area very stroppy. I keep a diary; it helps me to remember. Hot water bottles are a God send. I'm so sorry to hear you experience this too. Sending you a virtual hug!

Heartof3 profile image
Heartof3 in reply to SasF

Same here, I'm healthy and love exercising but unfortunately endo will not allow exersise πŸ˜– mad how it also wont allow us to sit comfortably either, it's a controlling nasty Bully 😞Heat is my best friend! Got to love a hot water bottle & bath aye 😊

Sending hugs right back at u ❣

Escapologygirl profile image
Escapologygirl

Omg yes and a whole day of pain follows if you try hoovering or cleaning. Tried lifting the bottle of fabric softener off the shelf and I nearly cried out from the sudden pain.

Heartof3 profile image
Heartof3 in reply to Escapologygirl

So shit isn't it 😞 slowly turning us into robots to accommodate endometriosis πŸ™„πŸ™ˆπŸ˜₯

Escapologygirl profile image
Escapologygirl in reply to Heartof3

Yes and being fobbed off with decapeptyl injections and coils isn't fair and noone takes it seriously

Heartof3 profile image
Heartof3 in reply to Escapologygirl

I no 😞 The coil didn't agree with me, i could litrally feel my womb contracting/ rejecting it. Was awful.

The pill just makes me even more hormonal.

Can't win can we xx

Escapologygirl profile image
Escapologygirl in reply to Heartof3

I've always said no every time the coil was suggested, I've never liked the idea of a coil inside me and yes it seems like you the pill doesn't agree with me either. Be nice to just catch a break just once wouldn't it? X

Lady1978 profile image
Lady1978

Hi

Everything everyone here is saying im feeling right now, im not long out of hospital and dont feel ive recovered fully yet from this flare

Nobody seems to get it and im fed up trying to explain the pain,

Im glad i saw this today as i dnt usually coment just have a read but geeze people you have all said what ive been trying to explain

Im really struggling with pains going from left hip to knee always thot i was loosing my mind but when this pain starts i know im in for a tough time

Kinda glad we’re in same boat here but wish we werent

RainorShine92 profile image
RainorShine92 in reply to Lady1978

I don't comment normally either, but this post caught me as I was going to ask the same. I am not long out of hospital too. Was admitted for 16 days with pain and urine retention and bowel juat went to sleep. I went out for a few hours yesterday on my own and drove for first time in months and my insides feel like they are being pulled oit of my vajayjay ! My hips all the way acrkss and down near my coxyx feel like when yoj pull a muscle and trap a nerve ! I cannot parent as I used to do running around ect or work. I have been off since 17th November because I can't sit down for that long or I feel like I have a balloon and a knife stabbing my rectum ! it is awful that this happens to usm It really doea take alot away from you.

I now have health anxiety from symptoms and think everything known to man is wring with me because when you ask no one seems to get what you are explaining so I Dr google ( bad thing to do I know). I hope you feel better soon x

Lady1978 profile image
Lady1978 in reply to RainorShine92

Its alot to deal with isnt it,

My nxt appt is 1/2/22 for the specialist and im hoping they have a plan i do have a whole load of questions

The antibiotics they’ve now put me on is for either a Uti or kidney infection they were not clear and my gp wasnt even vaguer if thats a word

Thank you for your kindness and listening im not very technical and thot id replied already

Totally sucks being a woman at times ❀️

Heartof3 profile image
Heartof3 in reply to Lady1978

Ah not too long then. If you haven't already then Write them all down ready for when you see them.God yes! It's definitely a mans world xx

Lady1978 profile image
Lady1978 in reply to Heartof3

Definitely not im on the final countdown

Yes ive got a wee list of things i was to ask 🀞🏻🀞🏻

Heartof3 profile image
Heartof3 in reply to Lady1978

Bless you Lady1978, it's such a battle isn't it. Was you in hospital for the pain? I've been in & out of hospital several times due to the flares, the doctors either thought it was my appendix , bad UTI, ibs or infection which have all been rulled out.. It's been such a battle to get someone to listen. I am now on the list for an op.It's so isolating isn't it πŸ˜₯

It's one if them things that unless you gave been through it then you don't understand, sadly!

You're not alone, feel free to message anytime❣

Lady1978 profile image
Lady1978

Sorry to hear your going thru alotIts the pain and tiredness its unreal

Alot of wat uve said is the same as myself i feel somebody is pulling my inside out and twisting them with regards to the bowel ive no idea wats going on there and again find it hard to explain

I hadnt realised how many people where affected by this horrible illness/disease

Ive been given anti depressants for yrs but im wondering if no its all this

Ive just packed myslef up with my child and came to my parents i feel im absolutely useless atm and all I do is moan n moan

I do send good wishes to yourself and hope you are pain free soon ❀️

Thank you for listening amd replying

Heartof3 profile image
Heartof3 in reply to Lady1978

Aww glad u got your parents, u definitely need some support right now. It's not nice at all 😒 I feel my pains are linked to depression & anxiety too.

Always here if you need a chat Hun xx

Lady1978 profile image
Lady1978

Thank you for your kindness ❀️

EmB18 profile image
EmB18

It is so horrible when the pain takes over your life like that. Your description was me about 15 years ago when just taking a few steps to the kitchen would cause pain, let along trying to lift a bag of shopping, exercise etc.

I really hope you find something that can help to manage your pain levels. I don't know what you've tried already, but I found a combination of nutritional therapy and homeopathy made a big difference to my symptoms. An anti-inflammatory diet taking out things like sugar, wheat and diary can help take things down a level, along with adding in lots of anti-inflammatory foods like fruit and veg. Or some people find acupuncture helps with pain. Hope you find something that works for you.

Heartof3 profile image
Heartof3 in reply to EmB18

Awful isn't it 😞Thank you for the advice, always appreciated.

I follow an antimflamortary diet. I'm also seeing physio at the mo.

The only thing that helps is rest & hot water bottles πŸ˜’ xx

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