I have stage 4 endo and my doctors have requested an MRI and and MDT meeting to discuss bowel and bladder resection. I was wondering if anyone has had bowel resection surgery for endo and if they recommend it for me
Surgery on bowels and bladder : I have... - Endometriosis UK
Sorry to hear you are going through all this.
I had a bowel resection done as emergency in 2009. I had no choice but to have it done as I could have died. My bowels somehow became twisted and knotted. My bowels were badly damaged that it caused me to have celiac disease. I go days sometimes weeks with just having liquids. You might not become like me. I recommend if you go ahead with the surgery for your recovery eat light foods, more liquids for the first week or two just so your bowels can start healing after surgery.
I had to have a bowel resection because of my endo about 10 years ago. I had a temporary ileostomy for a couple of months and felt great. The reversal was a bit of a shock as it took several weeks for my bowel to get used to being used again. I have to go to the toilet a lot more frequently (as my rectum had to be shortened) or I get very uncomfortable but for me it was definitely the right decision and made a big difference to my pain.
Thank you for replying. I’m so happy to hear that it actually made a big difference.
I’m trying to get as much info and experiences as I canand comforting to know that it actually works. May I ask, are you on hormone treatment right now?
I take contraceptive pill Loestrin 20 without a break, so I don't have periods and it keeps things under control. I still have a permanent niggle but nothing like it was. Looking back, I remember ironically that I did actually feel quite well before the surgery - I'd made a big effort with my diet, which seemed to help. I also got pregnant a couple of years after the surgery, which also seemed to help. So I think its a combination of things. I had terrible constipation before the surgery, which nothing seemed to help, and I don't get that now.