Problems urinatinf

[Fooofs91]

Hi guys I am seriously having problems emptying my bladder it’s been a while now but I’ve just been ignoring it I feel like my bladder never empties fully and I have to sometimes push to get any urine out , I go more often too :/ it’s not a uti and it’s not anything to do with my bladder I don’t think Becuase I Was urinating normally after my lap for 11 months until now . Anyone else having the same problem tas s uncomfortable not painful xxx

[wineandchocolate]

Same problem - no idea what it is though... Just had a urine test and a full abdominal MRI and there seems to be nothing wrong with my bladder.... except for an almost constant urgency to pee. If you find out what it is please let me know

[Fooofs91 in reply to wineandchocolate]

I will deffo update you when I find out myself love for the mean time pull through we are strong and we can fight this xxx

[wineandchocolate in reply to Fooofs91]

Thanks! I have been told that my uterus is bent over backwards and pushing against the intestine and spine... But I am not sure if this is related to the bladder. I saw in one of your replies that it could be from the uterosacral ligament? I had deeply infiltrating endo there so maybe that is the answer :/. I really hope you get some relief soon!

[Fooofs91 in reply to wineandchocolate]

Thank you love!! For letting me know I’m waiting for my doctor referral for the appointment now she’s booking me back In with a urologist :/ feels like before my endo nightmare ... and yessss my surgeon told me that Becuase the uterosacral ligaments are sooo close to the bladder it actually can irritate the outside of the bladder causing it to constantly want to excrete urine from irritation so it could just possibly be that but I hope I get some answers soon it’s really annoying I can’t even go somewhere like a restaraunt without thinking I need to pee desperately soon xxx

[wineandchocolate in reply to Fooofs91]

I really hope you get some answers soon! I know the struggle with the constant peeing - it has pretty much become a running joke amongst my family and friends... I think I have just pretty much accepted that every restaurant visit comes with at least two trips to the bathroom and just laugh it off xxx

[LovingVibes]

I’ve have had that problem and the MRI picked up adenomyosis. The inflammation causes pressure on my bladder so I and in the loo every 20mins or so.....

Everyone’s different so might be smthg else.... see if they can do small bowels MRI cos that’s how they picked up mine.

[HighsandLows81 in reply to LovingVibes]

Thanks for that info hon. Much needed x

[Fooofs91 in reply to LovingVibes]

Thank you love I will definetly he going for an MRI this is ridiculous xxx

[HighsandLows81]

Hi!

Yup, exactly the same issue here. I’ve never had anything like it before. It’s not an infection, it never is according to urine results. Just pus cells and white blood cells in there apparently.

This issue with urinating started a good few months back and like you I’ve been ignoring it. So many trips to the loo it drives me insane. I was diagnosed in 2008 so I tend to ignore things I shouldn’t but hey.

I’m wanting to go then I get to the loo and it feels like something is pressing on my bladder so much so that I have to physically push out the urine. I don’t know about you guys but I’m gobsmacked sometimes just how much water passes when it doesn’t feel much. Heard of the term with the racehorse!! It’s like that.

I’ve been told they thought it was adeno then the gynae who was helping me, she left to work in England. So I’ve been left with men who don’t give a damn.

I think there’s definitely something causing pressure and I hate that my gut instinct tells me it’s something along the lines of the second lady who replied to you. Or that it’s the endo sticking everything together again?

I’ll only find out if I see someone. But right now, I don’t have a decent gynae and I’ve been treated like shit since this started in 2003. So you can guess I’m not exactly fond of going to find someone.

I hope yours turns out to be something you can easily sort.

I wish I had advice but I’m in the exact same position

x

[Fooofs91 in reply to HighsandLows81]

Hi love !! It’s horrible I literally don’t even want to drink anything anymore Becuase I will be on the toilet pushing and pushing exactly as you said I was only diagnosed last year and I was told I have no adeno just endo leisons around my bladder , I asked my surgeon about this issue before and she told me it was probably Becuase the endo on the sacral ligaments where causing irritation to the outside of my bladder leaving it inflamed , Becuase this specific ligaments move when the bladder moves it makes them weaker :/ I don’t know after my lap I was normal I could pee like anyone else then it came back I’m deffo going for an MRI hopefully Becuase this is so distractingly annoying and uncomfortable I literally push my pee out and two minutes later I need to go again . Thanks guys for your honest help I will update you once I’m seen a doctor that cares Becuase they actually don’t xxx

[HighsandLows81 in reply to Fooofs91]

Hi love,

I was wondering if you had got any further with your mri. I haven’t!

I’ve got myself a dilemma now. Since I last wrote, well, I’m 37 and 99% sure I’m peri menopausal or maybe even in full menopause now that I look back at the last couple of years at my symptoms and behaviour. Ive also done two positive FSH tests so just need bloods to confirm it.

I’ve been convinced I have a mental illness because things have been that crazy. Well, a new one along with a couple I already have!

My last period was in April 2017. They say by rule of thumb, if you haven’t had a period for 12 months and there’s nothing else that is causing them to stop such as zoladex, radiation etc, that you are starting menopause. I don’t know if that’s true?

If I am, I read that problems urinating is apparently a symptom of the menopause along with many other symptoms that I have. Hot flushes, dryness, my head is in a fog and the mood swings are horrendous. I’m still not sure how to proceed with this but if I’m honest, I haven’t taken it in yet. It’s definitely not sunk in.

So I’m posting this because you never know who might be in the same position as me and will find this. I also still need to get the endo sorted too. Typical of my luck I swear, I don’t do things by half!

I hope this reaches you well hon and that you’re getting help.

Much love

[Fooofs91 in reply to HighsandLows81]

Hi love ! Hope you are well!! I went to see my doctor and my MRI was clear :/ they genuinely think it’s endo irritating the bladder from the outside from the utero-sacral ligaments , apparently your bladder can be so irritated it just gives the sensation you need to go so when you go only small amounts of urine come out . I’ve tried a new technique of training my bladder I drink gallons of water and only water everyday and I do pelvic exercises as much as I can. I’m trying to train my bladder to hold large amounts of water it isn’t comfortable but it must be hormonal because when I was on the pill it was worse (off the pill for a 2 month break hate the side effects) it’s not as bad now I really feel like it’s hormone related . Training my bladder has helped with the amount of times I go now I still need to go often but not as much. I think my biggest SAVIOUR for this cruel disorder is giving up gluten and dairy as much as I could it honestly changed the way my endo reacted I highly recommend it go everyone xxxx

[LovingVibes in reply to HighsandLows81]

Hey Hun, I’m so sorry to hear that this has been dragging on for so long!!! Omg!!! It’s unacceptable!

Can’t u ask ur GP to send u for an MRI? They are able to refer u for these scans....

[Fooofs91 in reply to LovingVibes]

Yes love I’m literally going to ask my doctor for a referral as soon as I didn’t even know it was an option they always told me they would only be able to see these things through lap xxxx

[LovingVibes in reply to Fooofs91]

I went to A&E 5times in a few weeks so they had to do all the tests! If u don’t come right w GP, just keep showing up in a&e with ur pains!

[Hazel173]

Hey, I have exactly the same. I feel like I constantly need to pee but when I go to the toilet I need to push so hard to get any out. It is affecting my sleep to as I wake up around 6 times a night to go for a pee at the very least. I was diagnosed with stage 1 last November. They never said anything about finding endo on my bladder but im pretty sure they either missed it, didnt bother looking or its somewhere else the my urethra causing irritation which could explain it. Im under the care of a pelvic pain team but they are useless, they told me since my endo was treated then it means I 100% dont have endo anymore, they are acting like its impossible for it to grow back 😕 ive asked to be refered to a general gynecologist to see if I can get a doctor who will actually listen and take my concerns seriously. If I find out anything about my pee issue I will let you know x

[HighsandLows81 in reply to Hazel173]

You should ask for a cystoscopy hon to make sure you don’t have interstitial cystitis. And if you do have endo on your bladder like I believe I do too and also my bowels, I definitely agree with you regarding they probably missed it or did a very substandard job so to speak.

I was amazed to find out that many general gynaes don’t even know how many different colours endo can be. Or even where it can be. So if they don’t even know what they’re looking for?? It’s a joke.

As for what your pain team said, tell them to shove their opinion up their backsides because to say something like that, they literally have NO idea what they’re talking about. So just ignore them, I do! Causes me a lot less stress. Idiots, honestly.

I know it’s very hard believe me but you should insist on seeing a specialist if there’s one at your hospital. If not, at least a general gynae. You can’t be left like this, it’s disgusting.

I want to keep this short but it’s an example of just how wrong and incapable these surgeons are.

My last op was in 2013 and he said it was in my head and he went through the losing a limb speech. Then he said he knew he wouldn’t find anything but would operate if I promised to go to pain clinic. I’d already told him just ten minutes before that I’d been in 2010. Wtf? He wasn’t listening to a word I said.

Day of op. He came and saw me and my mum asked how long it would be. He said not to worry, I’ll be back on the ward by 2pm. This was at 11am. Went down at midday. The next info I have is only because the anaesthetist told me in recovery. I was in surgery for just over 4 hours and then because of the pain, about an hour in recovery because they had to keep putting me back under because the pain was simply out of control when they were trying to wake me.

Then when I was coming around after god knows how much morphine and first thing I remember is seeing a clock. It was 5.40pm, I remember thinking my mum is going to be going crazy.

Then I was told that the surgeon had organised a private room with a morphine drip!! The same damn surgeon who didn’t believe me!

So we go from, it’s all in your head to then having a private room with morphine drip!!? I’ve had kidney stones and the endo pain and have never once been offered a morphine drip for pain! I thought when I see the idiot I’m going to ask him if it’s usual to give someone a morphine drip when the pain is in their head? I was livid. But I never got the chance. My post op was cancelled and that was that. I still don’t even know what he did because apparently it’s not in my records??

So yeah, he’s just one of millions of endo surgeons who are completely wrong and if I’m honest, completely out of their depth when it comes to endometriosis.

Wishing you all the luck hon. x

[Fooofs91]

I hope you find out what it is :/ love , same they never found endo on my bladder but it was around my bladder so I’m guessing it is a cause of irritation it’s really strange . Xxx

[HighsandLows81 in reply to Fooofs91]

Right back at you hon. No Dr seems to understand or care. I really hope you get your answers.

I’ve only just seen your post about gluten and dairy. You’re spot on there! I’m coeliacs and only found out at 21. It’s been incredibly hard, especially at the beginning because I never realised how many things had wheat in it! And this was years before it became a “Celeb Diet Fad” you know? The choice was disgusting! And the taste even worse haha!

The first gf bread I tried was the texture of a crumpet and it was foul! We’ve come a hell of a long way since my first loaf of crumpet bread believe me! But it’s still not good enough, there needs to be more. It’s the price I have a problem with. Don’t get me started!!

Good luck hon!