Having a really bad day like we all get.

[Suzileverell]

Hi everyone,

I don't mean to have a rant but I'm having a real bad day. I still haven't managed to get out of bed yet but I'm going to have to get up very soon for work. Luckily I'm only working in the afternoon today. I'm in so much pain and I feel so so tired I also feel really sick. I can't stop crying because the pain is getting to much my symptoms are getting more and more extreme each day. I've had enough of putting a brave face on while I'm at work and I've had so much time off this year I can't afford to have anymore off. I'm lost as to what to do next, I had a lap done this year and no endo was found so I really don't know what's wrong with me. I've been told it's all in my head so I'm trying to ignore it and just try and get on with life. My Dr isn't sure on what to do next and my boyfriend has had enough of me letting it all out on him and I feel really bad about it but because he's the only one in the house I can't help but break down into tears when it's all getting to much.

I'm taking pain killers daily and I'm also on the pill because if not I literally have a constant heavy period. I have no sex life what so ever because I find it's way to painful and I bleed for a couple of days after.

I have spoken to a dietion about food that may help and cutting things out so just in the process of seeing if it will help. But if there is anything else I can do or try to help with anything I would be more than willing to give it ago.

I've just had enough of something that's taking over my life and I don't even know what it is. It's heart breaking to think so many other women are going through this I would just like to say how brave you all are because I'm really not coping well with it. So sorry to rant on I just feel there must be something I can do to improve my life. I used to be such an active person who loved life. Xx

[razzledazzle1]

Hiya,

I'm so sorry you feel this way, I have definitely been there many many times.

You need to listen to your body and don't put any pressure on yourself!

Before I was diagnosed I was prescribed with Mefenamic Acid which seemed to be the only thing that hit the sides. No painkillers helped me other than really strong codeine, which is addictive and can only be taken for three days which didn't really help me as I needed to take it leading up to, during and a couple of days after my period.

I was also put on the mini pill desogestrel, which you take non stop without any breaks, so in theory you do not have any periods. For me this was also a life saver because I couldn't make any plans in advance because if it fell on a day where I had pain - all I would want to do is lay in the bath and cry.

I have also heard about the dietary changes! When I come back from my holiday next week, I am going to give the inflammatory diet a go. I have heard that red meat, dairy and gluten are the worst offenders for flare ups and pain. I am feeling very overwhelmed with having to cut all of that out including refined sugar and soy (I am a big lover of food) - but if it helps then I suppose it is worthwhile!

So sorry you're in so much pain - take a hot water bottle with you and take it easy and I hope you feel better very soon xxxx

[Suzileverell in reply to razzledazzle1]

Thank for for your advice. I'm now taking mefenamic acid and that does help a little but I still seem to get bad days. So I've also been taken just paracetamol it doesn't seem to do a lot but as you say taking anything strong must be limited. That's a good idea taking a hot water bottle out with me.

That's interesting the mini pill worked for you as I was put on that but I still kept bleeding constantly. I'm now on the microgynon and I only have a break every 3 months from it. It has worked a bit but I'm now finding the pain is there even when I'm not on my period now.

Fingers crossed the diet thing helps both of us! I know how you feel as I love my food to so it's gonna be a challenge lol. But it'll be so worth it if it helps.

Thank you for your advice I really appreciate it. I hope everything works out for you as well. Xxxxx

[Tessaroo]

im so sorry to hear your having a bad pain day, just remember you’re not alone and trust your body! Pressure your gp to run more tests and find out the sole of the problem.

I hope you start to feel better and get a good night sleep tonight 💗

[Suzileverell in reply to Tessaroo]

Thank you that is very true.

I keep going backwards and forwards I'm not even sure if they even know what to do. But I guess there must be more things they can do.

Xxxxx