Having a bad day...: Do you ever start to... - Endometriosis UK

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Having a bad day...

opheliapayne profile image
9 Replies

Do you ever start to feel elated because the pain seems to have gone away, and then it suddenly strikes you down? I am having one of those days today. I feel cheated. Unable to pull myself together because I am so SICK and tired of having this illness stop me from being who I am. I can't face being doped up on painkillers and I'm sick of moaning to my family but I've really had enough. I'm only 22 and already my mind is thinking about having everything removed, rendering me infertile, just to stop this pain.

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opheliapayne profile image
opheliapayne
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9 Replies
zazzy_113 profile image
zazzy_113

Hi I honestly can tell how u are feeling am feeling exactly the same today. Hot water bottle and keeping warm is my remedy

opheliapayne profile image
opheliapayne in reply tozazzy_113

Yeah I'm under my duvet with hot water bottle. Was meant to be on a date. Don't even know how to explain to the guy! I get so tearful when it's like this I just don't know what to do with myself! xx

Rufio profile image
Rufio

I feel for you, I've felt exactly the same way when I was first diagnosed and I remember writing very similar words to yourself in my journal. Get all the support you can from friends and family etc, and I have found this forum very supportive with people who understand how you feel. Take care of yourself and have hope that things can improve x

opheliapayne profile image
opheliapayne in reply toRufio

Thanks lovely :). Knowing I'm not alone helps as most people made me feel like it was all in my head until I was diagnosed 18months ago! Even after that I still felt like I couldn't tell anyone when I was in pain. xx

knoxy profile image
knoxy

Im feeling exactly the same way today hun. Had to leave work at dinner as id spent most of morning crying on the shopfloor as pain was so bad n im so sick n fed up of this cripplibg illness. Ive been on sofa with duvet strong painkillers n hot water bottle n still feel pants. Just hope my appt with consultant on fri is productive. Xxx

opheliapayne profile image
opheliapayne in reply toknoxy

Leaving work is the worst. I've just gone back to Uni after taking a year out because it was so debilitating and I'm struggling so much to get myself back on top of things. Good luck on Friday don't let him/her brush off anything you say! I've given up on doctors because they make me feel like I'm over reacting xxx

maz778 profile image
maz778

I recently been diagnosed with endo and start to feel ok for a bit so I start trying

to do everyday things cleaning etc. Doesn't take long before I'm

back on the sofa, in pain and feeling rotten. Haven't been anywhere in months cos its so

bad. Feel so bad for my partner and kids! Have to stay positive though and take each day as it comes. Good luck to all of you. Xxx

LAB82 profile image
LAB82 in reply tomaz778

Feeling the same can be readonably ok then next minutr on the floor in absolute agony and am so tired and achy. My boyfriend very supportive but mudt be frustrsting for him as the last few months I am really unable to do anything or go anywhere and on the dsys when I feel able to do things feel absolutely shattered after. Just take one day at a time I guess and make the most of times when pain isn't so bad. I know prob everyone does this already but if I know I habe a stash of painkillers in my hsndbag and any other supplies for emergencies it tskes away dome of thfear of going out and I can relax and avtually enjoy the times when I can go out. apologies for the spelling. Typing this up on my phone...

maeline profile image
maeline

Yes we all have bad day !

Just keep positive ! Tomorrow is another day !

Keep smiling !

Take care xxxx

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