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Endometriosis UK
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Today is a bad day

Today is my last day off before going back to work tomorrow after my unsuccessful lap on 30th June.

I am struggling with the idea of going back to work with the possibility of waiting months before I see the endometriosis specialist I have been referred to.

I am sick of explaining to people how ill I am when people say, "you don't look it" or "you look fine, you must be better".

I am really struggling with people telling me, "you'll be fine once you're back at work" or just saying I'm silly for even worrying.

I'm worrying because I'm on high doses of morphine. I'm worrying because I am constantly nauseous.

When I'm at home I can go lie down or do whatever to make me feel a little better but the thought of not having the comfort of my own home is terrifying.

I am so tired of being 20 years old and feeling this unwell all the time with no answers.

I just needed a rant.

I am in so much pain every day and things just seem to have been getting worse and worse and I am just at my breaking point now.

I hope everyone is not suffering too badly today💛

6 Replies

Hey I understand the long time of not getting diagnosed. Similar things have happened to me when I was younger but for a different reason. If you need someone to talk to who gets it you can always pm me. I hope you get answers relatively soon.


I'm sorry you're having such a tough time. The women on here have had many similar experiences and we can empathise with your frustration, pain and sadness.

You need to explain to your G.P how much this is affecting your quality of life. They can write to the hospital on your behalf and you may get an earlier appointment.

I've survived this hellish process so please rest assured that there's light at the end of the tunnel. What you're experiencing now is the worst part. We're here if you need to vent / receive advice.

Lots of love, x

1 like

I'm so sorry to hear your suffering so much. I too feel like I'm at my wits end these last few days but please rest assured there is a light at the end of the tunnel it just seems a long way away right now. When your back at work just explain things about how your feeling at the end of the day we are all only human. I know it's tough as it isn't a visible illness but that shouldn't matter regardless.

Take care and I hope you find some relief soon xx

1 like

Hope your first day back wasnt too bad and work allowed you to ease yourself back in gently. Im still off after my lap, signed off for rest of week. This is my fourth week but i am hoping to do only half days from Thursday then back to my six hour days next week.

1 like

It was awful... see my new post


What do you mean unsuccessful lap?

I had one and they removed the endometriosis, so it was successful but my horrible symptoms of dizziness, nausea are not going away.. Been off work for months, I feel so weak and unwell 80% of the time.. They say its caused by fibroids which they have not removed, too many and to big.. Im in a catch 22, worried I wont be able to go back to work either.. Youre right people do not believe you, work or even family.. Its terrible, they think you're just a weak person.. You need to insist with your GP and tell them you cannot work in your state and can they push your referral forward? You could akways try a private GP just for tge referral? That might accelerate the process..


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