Then you likely have RV Endo so can ask for a referral to a specialist BSGE accredited Endo centre where you actually have a decent chance of a diagnosis. Deep RV bowel Endo must be treated at BSGE centre according to the NHS contract so you can take the contract to your GP with your list of symptom and not take no for an answer.
"Laparoscopic surgery for deeply infiltrating endometriosis or for recto-vaginal endometriosis
is considered to be a specialised service due to its complexity and high risk of morbidity. The
British Society for Gynaecological Endoscopy has established criteria
centres carrying out such work and accredits departments that reach its standards. The
Working in a multi-disciplinary team with a named colorectal surgeon and nurse
Holding a dedicated endometriosis clinic
Operating on a minimum number of patients with severe endometriosis each year
Submitting operative and quality of life outcome data to a national database
Audit their outcomes
These criteria are designed to ensure quality care to women with complex surgical needs to
minimise the risk of surgical complication and maximise the opportunity to deliver the best
outcomes. Effective experienced care such as this will reduce the cost to the taxpayer by
reducing the current experience of multiple less adequate procedures, long-term medication,
multiple hospital investigations and recurrent admissions.
Patients with known severe disease, which has not been adequately treated or has recurred,
are likely to be referred by primary care clinicians. Gynaecologists in secondary care, who
identify severe deeply infiltrating endometriosis or recto-vaginal disease at laparoscopy, or
open surgery, will refer patients from secondary care to an Endometriosis centre.
Laparoscopic images and or video, of suitable quality and format will be included with the
referral wherever they are available as this may prevent the need for repeat laparoscopic
pelvic survey after referral.