Feel at bit at the end of the road with a... - Endometriosis UK

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Feel at bit at the end of the road with a plan of action...advice really appreciated.

Parris17 profile image
3 Replies

Hi,

(New here)

Feel at bit at the end of the road with a plan of action...advice really appreciated.

I have had all sorts of ops here and there over the years and typically nothing is helping me now.

This year I tried the Zoltax injection but I only managed 1 round of the injection due to really server migraines, a month of headaches and migraines meant we all felt I couldn't continue.

So we have put me back on the mini pill. I also have the coil fitted. I have taken this as a combined method before and although it didn't work in helping my pain or bleeding, I felt fine (maybe a bit moody).

Consultant wanted me to try it again incase the Zoltax had helped a bit and now this could buy me some more time.

I am a month in on the mini pill & coil combined and this time (although I have done this before and felt fine) I am feeling really really sick.

So sick I actually thought about taking a pregnancy test. Which is ridiculous since I was scanned in January and in that time had Zoltax / mini pill & coil plus it would have to be practically a miracle conception!@

I feel I have now tried everything and my body is just not happy with the drug options so on top of pain / constant light bleeding...I now have other 'day altering' symptoms.

I am busy with 3 kids / run my own business - no time to rest in bed like I wish I could.

I am sure this feels a very familiar story to all of you.

I actually haven't chatted to my friends/work colleagues about this much, I almost find it easier to try and push through - by them not knowing it helps me make it through the day. As I fear as soon as I admit how tough it is, well...you know...at little less coping on part.

But I think I have to stop taking the mini pill, the constant waves of feeling sick are quite strong and distracting.

But what next?

Do I just accept the hysterectomy ?

I tried to leave a message for my GP today but they want me to see him tomorrow instead. I am not taking the mini pill tonight that much I know - executive decision on my part.

Any advice would be amazing, thank you.

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Parris17
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Riverchick profile image
Riverchick

Hi,

I understand about not telling many people and also don’t like people asking all the time and find it easier if I can just get on with it , I’d rather just say if I need help I would rather ask without going into detail. I would like to say though I think you’ll find the more you look into it hysterectomy doesn’t necessarily stop Endo. Are you being seen at a bsg Endo specialist centre?

Parris17 profile image
Parris17 in reply to Riverchick

Hello,

Thank you for taking the time to reply.

No just my local hospital....

Riverchick profile image
Riverchick in reply to Parris17

Morning ,

So you say you’ve had various sugries have you been given formal diagnoses and excision? If you have I would request to be seen at a bsge endometriosis centre . Also you might find some of lindles posts informative x

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