No social life: Today hubby is out and Im... - Endometriosis UK

Endometriosis UK

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No social life

Puttingonaface profile image
12 Replies

Today hubby is out and Im stuck at home with a wheat bag and blankets so fed up.

Feel im losing friends as they dont understand why i cant commit to going out or cant drink due to drugs.

Hubby keeps trying to make me go for walks which just leave me in agony.

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Puttingonaface profile image
Puttingonaface
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12 Replies
Amyjane88 profile image
Amyjane88

Aww I feel your pain. After years of spinal surgery I have also lost a fair few friends. Out of all my friends 4 have stood by me and are a great support. I found I kept saying I could not go out and then they would stop asking. Most people don't understand what it is like to be in pain every day.

If you ever want a chat or need a friend feel free to give me a mail xxxx

Puttingonaface profile image
Puttingonaface in reply to Amyjane88

Thanks just feel lonely alot of the time.

princessk09 profile image
princessk09

Hey, I know exactly how you feel. I’m pretty much going through this all by myself. My boyfriend doesn’t live near me and I always feel bad for complaining a lot to him on the phone. He tries his best, bless him and idk what I’d do without him tbh

My parents cause me a lot of stress with a lack of understanding and stuff. They always shout at me and get pissed off when I struggle to go out and do things etc.

I don’t have any friends really and my best friend doesn’t understand why I can’t go out and drink, due to bloating, pain etc.

I’m always here and just PM me whenever you like hun 💕💕

Puttingonaface profile image
Puttingonaface

Thanks x

Starry profile image
Starry

Big big hugs. I totally relate. I have lost all of my friends since endo struck. I can't travel to see the old ones and they stopped visiting me then I couldn't go out from fatigue then I stopped being able to work from it then I had surgery. I'm not able to got out and also can't eat normally and can't sit in theatre or cinema seats from back and coccyx pain. I've got no life left and both me and my hubby are depressed over what has happened and I feel terribly isolated. I'm hoping to make return to work attempt number two in the next fortnight.

Thinking of you, you always have us here to turn to for support whenever it gets hard xxxxxx

Puttingonaface profile image
Puttingonaface in reply to Starry

Ta

ASP789 profile image
ASP789

Sending lots of love. I know what you mean. It's such a horrible illness for causing isolation ☹

It's so hard for people to understand but I know how it feels to have lost and feel like you're losing friends because of it.

You're not alone though we are all here xx

Emmyeve profile image
Emmyeve

It might just feel that way, ask them to cover over for a cuppa. Sometimes when I’m feeling my worst, my sister and cousin will pop over and we will have a giggle & it can make you feel better, distract you from the pain a little. Feel better soon x

PJ11 profile image
PJ11

I suffered a lot until the doctor told me to tri cycle my pill which is where I take microgynon contraceptive pill for 3 months without a break it has helped with to have a lot less pain and bloating. I've had surgery twice but went 10 yrs before 2nd surgery so think taking the pill like that has helped.

I know it's not going to work for everyone but wonder if it could work for some. I hope things get better for you xxx

Puttingonaface profile image
Puttingonaface in reply to PJ11

Ta

rosesinbloom profile image
rosesinbloom

I completely understand you, I'm in a very similar position myself, having this and other long term chronic conditions causing pain and fatigue, my friends have dropped off and now I feel very isolated and trapped by it.

It does make you realise how many 'friendships' are based on surface things, like you do an activity together, you're active together or work together, but should you be unable to do what they like to do, then you're kind of dropped as you no longer fit in with what they want to do.

I don't have any advise, just to say I understand how you feel sadly.

Puttingonaface profile image
Puttingonaface

Thanks for replies. Feel better im not the only one.

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