Advice on pregnancy and endo....

[oharal93]

Hello, im very new to this forum but ive had endo for a few years, had my operation last January and me and my partner have been actively trying for a year now, ive been taking folic acid, correct diet, exercise, cut out alcohol... I have doctors today to talk more but is anyone is the same position? im only 22 and it kills me to think I cant have my own babies just some advice from someone who understands would be amazing. thanks xx

[Hollibob]

If you've got endo, they should start investigations off for you after 6 months, so I would be asking them what tests they can do now and what the referral process is. Things just take time and one thing I've learnt is that you can't sit and wait for others to sort things out for you...good luck x

[oharal93 in reply to Hollibob]

thanks - we have been busy moving out etc that its sort of been at the back of my mind.... now we are completely settled im ready to push for more answers. Hopefully my doctor will start to process today of helping but I was just wondering if any had been in this situation before.

I have also learnt not to wait and to keep pushing, took them so long to diagnose me because they kept ignoring what I said xx

[Hollibob in reply to oharal93]

It's better to be ready mentally and being settled in your home will be better.

I found out I had stage 3 endo in 2010, the same year that I met my now hubby. I wanted to be married before having kids. We started trying in Feb 2013. 6 months later went to the GP for basic tests, got referred to gyne who did my diagnostic laparoscopy previously. Did more blood tests, another laparoscopy, 6 cycles of clomid, more tests, Hycosy and then got referred for IVF.

My AMH test revealed it is low for my age, so the dosage would have to be higher.

Started IVF 3 months after referral (Dec 14). Got a BFP, but sadly miscarried.

Second cycle - BFN

Frozen cycle - BFP, but had another miscarriage.

From having those miscarriages, there were two incidents during taking clomid that we believe were also miscarriages.

We decided to have some recurrent miscarriage blood tests and so far, nothing has transpired.

I'll be having a hysteroscopy in May and are waiting for the results for the chromosome tests.

Having been through all of this, if you can get tests to check for different things before going down the IVF route then it might be worth it...also maybe consider reflexology and acupuncture X 

[oharal93 in reply to Hollibob]

Oh I'm so sorry to hear all of that. It makes my ache when some woman/couples want nothing more than to just have one baby, to start their own family but they just cant

My friend told me to try get clomid but I read a few things about the long term damage? I am just doing research on acupuncture.. thanks for the tip xxx

[Hollibob in reply to oharal93]

To be honest, I was worried about clomid aggravating the endo, but you end up being willing to try anything! Some things say if it's not worked in 3 cycles, then it might not work..it's frustrating when you know you ovulate, but they give you this to help that....

[Cazo]

See if you can start the process for having some fertility tests done. Sometimes they don't take it seriously (especially at your age) until you've been ttc for two or three years as these things are not always instant (although when you have problems it seems to happen instantly for everyone around you!)

We have been ttc for five years. Two years ago I tried Clomid with no success. Last year we had two rounds of IVF which both failed after embryo transfer. Waiting to start my third round of IVF in January this year I found out I was pregnant so we now know it IS possible, even though it took a lot to get there! However, I sadly miscarried at 12 weeks 😔

I am now going in for a laparoscopy on 6th May to investigate and remove any endo that has returned (last lap was in 2010 where they found it extensively along with a 7cm cyst on my right ovary) before we try again as I think it is pointless until I get it sorted.

I know it might not be of any consolation but at least you do have youth on your side which does help due to the number and quality of eggs. I am 38 now so starting to lose hope a bit.

I know none of that is massively helpful but it always helps to know you're not alone and there are plenty of people who understand. Good luck with your journey.

[oharal93 in reply to Cazo]

Hey,

I'm so sorry to hear about that nothing worse than wanting something so much and it being taken away.  I hope they get it sorted in May, my fingers are crossed for you!!! I am lucky that i am still young, my doctor was very lovely! He has arranged a blood test fro this Thursday then again for end of the month to  test my hormone levels and my ovulation levels...hopefully get some answer.

Would you recommend clomid? I have heard to try it but read some bad long term problems?

Its nice to hear someone elses story because makes me realise I'm not alone.

Don't lose hope just yet!! I really do pray good things come in May for you xxx

[Cazo in reply to oharal93]

I know someone who had great success with Clomid and I'm sure lots of people do. It didn't help me, but then neither did the IVF so I guess everyone is different and often you need to try everything a good few times before it works! I would certainly recommend trying it before going through IVF as IVF is a pretty hideous process to go through so I'd avoid it unless you really have no option.

I didn't get any side effects with it as far as I can remember. I think I just felt a bit sick in the mornings ironically! I was on,y on it a few months though.

Keep us updated of your progress, I'm sure you will have success in the end. A year really is no time at all for ttc in the grand scheme of things. Some people seem to fall pregnant just by looking at their partner and others of us take a while longer unfortunately! It will be worth the end hopefully! x

[oharal93 in reply to Cazo]

okay thanks for the advice, I will speak more to my doctor at the end of the month after all of my blood tests. Seems like im in for a long process.. but like you say hopefully I will be okay!!

Will keep posting and fingers crossed we don't have to wait to long xxxx

[CE_88_14]

I know this is an older post but thought I would message anyway. My husband and I have been actively trying for 2.5 years we started when I was 25 and I'm now 28. We were diagnosed with unexplained fertility and told IVF was the only option my bloods showed up I ovulate and my hormones were normal. I started getting pain about 18 months ago and that to me was an indication I ovulated then after a year the pain progressed and led to me being diagnosed last week with endo on my bowel and my ovary being stuck to my bowel which explains a lot if I'm honest. I asked about chlomid but my doctor said as my test shows I ovulate it would do more harm than good so we're waiting on our first IVF cycle starting. I understand how hard it Is to keep trying month in and out and nothing happens it feels like your failing at life. My gyni said she has high hopes for IVF so I'm hoping it's not as horrendous as some other comments suggest anyways it can't be worse than the HSG that was horrific. I'd say keep your chin up and try and stay positive there are ways and means of having kids these days and as I said to my husband regardless if they are mine or not we will have children. One of my good friends tried 5 years undiagnosed with no luck then got endo on her bladder removed and conceive naturally within 3 months so this gives me hope. Stay positive and strong plenty time and options available xxx

[oharal93 in reply to CE_88_14]

I hope IVF works for you and your husband soon enough. It is tough, and it mentally drains you sometimes but having my amazing partner next to me really helps. I have been started on clomid so hopefully it will work and we will have some magic happen xx