Im not really used to writing on these sort of things but i am so desperate and so depressed it is worth trying! Reading other peoples stories in here i am so comforted to see i am not alone in being trapped in a life with this disease that noone seems to understand, but also sad to see how many other people are going through the same hell. I am 30 and have a long history of bad periods and period pain it took me 10 years to be diagnosed with endo. I have tried numerous pain killers, and contraceptive pills nothing works.I have a daughter who is now 6 years old and even throughout the pregnancy i suffered with pain and over the last 6 years it has got worse and worse. I was put on a course of zoladex injections and finally for the first time in my life ( since periods began) i was pain free!! The side affects were not nice hot flushes etc but anything was better than the pain.The doctors then said zoladex can only be used tenporarily because of the affects it may have on the bones, so what was the point in me finally finding a cure to then be told i couldnt have it??About 3 months ago i had the laparoscopy with laser treatment and it has not done a thing. The pain is back with avengance.i told the hospital this and after years of going back and forth they have said there is nothing else they can do for me and discharged me for good. For 2 weeks of every month the pain wakes me all through the night i feel like my left ovary is on fire, it spreads to my hip and down my leg.I cant stand or walk. At this moment i am in the 2 weeks of pain and i cant cope anymore. im not sleeping, the pain is draining me, i just lay in bed exhausted and derpressed. The thought that this is it, this is my life, is unbearable. Im sorry this is not an uplifting story full of advice.But it is my story, my truth about my life with endo, the disease that noone seems to take seriously, the disease that noone can cure and the disease that is taking my life away. x
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