Endo symptoms happening randomly

[anderson29]

Hi all, hope you're well. I'll keep this short, but I'm basically on the waiting list for surgery to see if I have endo. I started getting really bad symptoms when I came off the mini pill about 8 months ago (stabbing pains in rectum on period, nausea, vomiting, severe diarrhoea, burning pains in my right next to my hip and in my hip etc.) and was hospitalised for a week in October due to severe symptoms. Pretty much everything else has been ruled out (had a colonoscopy, endoscopy, CT scan, blood tests, stool tests etc.) and this consultant is pretty sure it's endo.

However, the reason I have a bit of doubt is because of the random nature of my symptoms. I'm back on the mini pill and have massively improved, to the point of where I can function normally most days and only have the really bad fatigue and mild nausea with random bouts of diarrhoea etc. Before when I was off the mini pill, I'd get much much worse when I had my period, but when I've had a bleed on the mini pill (more random spotting mixed with an irregular period), I've not had the same correlation of symptoms. I thought bleeding would always make it worse? Plus, I have random mornings (like today) where I'm not bleeding and I've had horrific diarrhoea and felt much worse again like I did a couple of months ago. Can this happen with endo? Can the mini pill actually help this much so quickly when my symptoms were so severe or could it be another illness? I'd love to hear your thoughts. Thank you

[Starry]

Hey x

Perhaps your Hormones are out of whack with stopping and starting pills.

I wouldn't try to second guess a diagnosis. Endo is notoriously difficult to diagnose and diagnostic lap is the gold standard.

Feiw I had rv endo and my bowel symptoms were cyclical, I just didn't realise it.

You could in the meantime look to manage your diahrroea by experimenting with an elimination diet eg keeping a food and symptoms diary, cutting out dairy or gluten (both inflammatory foods) or high fodmap foods one at a time for at least a month and see what happens.