Endometriosis/fibroid/adhensions/cyts

[Jenifer99]

Hello my beautiful friends. Hope your all doing good? This is my first post in this forum and hoping to hear from everyone whose been in similar situation like me their own experiences and also any positive vibes will be highly appreciated. Early last year I was diagnosed with Endo which led to adhensions/fibroid and cyts on my left tube. I had an open surgery done to remove fibroid and adhensions, cyts drained out from left tube which left me with another worry whether it will return back as I had preferred it to be clipped. I am now on zoladex injection for three months after which I will be going ivf private funding. I also have low ovarian reserve and would appreciate if their is anything I can do to improve it as ivf is a lot of money. It breaks my heart that am going through this, I have never had any child, got married late at 36 and am now 37 this year. Praying to God for my miracle baby 🙏🏿🙏🏿🙏🏿

[Loll1980]

Hi Jenifer,

I had a very similar situation to you (although with keyhole surgery rather than open). We went ahead with our first round of ivf very soon after surgery to increase our chances of success and chose the most successful clinic in the country. Luckily it worked first time for us but was touch and go as my follicles (egg sacks) didn't develop quickly enough so we had quite a long cycle. We also had immune testing and intralipid treatment during the cycle which is recommended for people with endo. This may or may not have made a difference to our success but we were prepared to do everything that was offered to us. Your egg reserve being low isn't necessarily an issue (that's what we've always been told anyway) as long as the quality is good. So don't let that figure get you down. That's the joy of ivf, they tailor your treatment to your circumstances. As long as you choose a clinic that does this. Best of luck with it all and keep the faith. xx

[Jenifer99 in reply to Loll1980]

Ooooh my God .thank you so much for your response. You don’t know how much of joy and relief your words have given me this afternoon. Thank you 🙏🏿

[Coffeebean1305]

Hi Jenifer

Like you I had fibroids and endometriosis. I had a few unsuccessful IVF cycles and on the last one my NHS consultant wrote to the clinic to ask if they would consider keeping me on zolodex/synarel for a longer period of time to calm the endometriosis down a bit before going through the stimulation stage... well I truly believe this was what worked for me. I got the best results ever from that cycle! I would always say the clinics should tailor make the drugs cycle as going by standard protocol for everyone doesn’t always work. I wish you all the very best xx

[Jenifer99 in reply to Coffeebean1305]

Thank you coffeebean. Is so sad the mess endometriosis have cursed to us all but am glad there is still remedies to achieve our miracle babies. Thank you for your response, your positive vibes is making me more stronger while waiting to start my ivf process in April 🙏🏿

[Donna-cook in reply to Coffeebean1305]

Hi there I know this is a very old thread but how long did you stay on zolodex? I’m in the same situation but having prostap - only been on 2 months so wondering what your protocol was as they seem willing to do my next transfer in a months time ? Many thanks if you can respond that would be fab

[Jenifer99 in reply to Donna-cook]

Hi there,

Thanks for your enquiry. I was on zoladex for 6months after which I was adviced by my gyna to wait for 3months in other for the injection to live my system before proceeding for my ivf. But unfortunately for me, my endo returned within same time affecting my both fallopian tubes which delayed my IVF as they could not proceed due to swollen tubes. I was adviced to remove before they can proceed otherwise success rate will be very low. I was put back on NHS waiting list for 9months and had to wait that long as ivf isnt cheap privately since not entitled free funding by NHS due to low ovaria reserve. So had to wait to complete the surgery with NHS. Just had my second surgery done last week to remove both tubes, now waiting to recover before proceeding with my ivf privately, my story has been a very sad one but am putting my hopes high believing God that this year I will achive my miracle baby. I have also not been able to post anything since over a year now as I have been fighting my own demons alone . Best wishes x

[Coffeebean1305]

Positive vibes all the way 🙏🏾 Xx

[Donna-cook]

Thanks so much for sharing and sending my love for speedy recovery and for your IVF to work this year. My journey has also been a long one & this will be almost our last hope at 44 our time is running out so I have to hope that the short prostap cycle works xx

[Jenifer99 in reply to Donna-cook]

Your very welcome Donna. Time and endo has been the worst problem on this journey. I will also be 38yrs in october . The journey of having a miracle baby has never been bed of roses for women like us. Some people get it very easy but some through pains. But I believe this year is ours. We must surely testify like other women on this forum. Best wishes and with faith our miracle will surely come to pass this year. 🙏🙏🙏