Endo and fibroid....: I was diagnosed with... - Endometriosis UK

Endometriosis UK

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Endo and fibroid....

Sara2013 profile image
5 Replies

I was diagnosed with severe endo 8 months ago. We finally got referred for IVF and in a scan they have found a sub-mucosal fibroid which they say has to be removed before ivf. I am so upset that we got this far and now they have found a fibroid. Is anyone else feeling alone with all these diagnosis or is it just me?.....

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Sara2013 profile image
Sara2013
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Noper profile image
Noper

I had fibroids and endo removed before my IVF. I even had another fibroid discovered around the time of one of my IVF cycles, and so had to have this removed and my embryos frozen before continuing. It's all pretty hard, having to go through all these ops, so I do empathise with you. I did eventually become pregnant, from the frozen cycle of IVF, and now have a 7 week old baby, so in my case things did turn out well. I wish you all the best - I know it's a hard journey with no guarantees, but by having the endo and fibroids treated, you are doing all you can to give yourself the best chance of pregnancy.

Sara2013 profile image
Sara2013 in reply to Noper

Thank you for this. It does give me hope.

Jem75 profile image
Jem75

Hi there,

bless you. I can relate to what you are saying. I really can. I have endo and fibroids. I was refered to UCHL who have been good. My number is 07850487777. Call me if you need a chat.

Love Jemma x

Sara2013 profile image
Sara2013 in reply to Jem75

Can I ask which consultant you have been seeing? May have to message as not sure we are allowed to drop names on this? X x

Jem75 profile image
Jem75 in reply to Sara2013

Hi UCHL have a team of consultants and doctors who work together. If you go on their website you will see their names - endometriosis centre UCHL. Are you with a BSGE registered endo centre? The bsge have a website - gov registered centres. Imp u are with one.

Best wishes to you!

Jemma x

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