A concerned boyfriend feeling a little helpless...

[Rd93]

Hello everyone,

This is my first time posting, I've actually been following the page for a number of months now, mainly just to try and learn as much as possible about all things endo to help support and care for my partner.

But I actually wanted to ask a few questions today, mainly (and hopefully) to hear some positive feedback regarding the Mirena Coil.

My partner was diagnosed with endo a few years ago and after her most recent (2nd) lap in September, she was fitted the Mirena coil as a possible preventative after a number inconsistent and unsuccessful contraceptive pills (micro and combination).

The main questions I wanted to ask were:

Has anybody here had a positive reaction to the Mirena Coil following surgery?

If so, how long did it take to settle and when did you begin to notice an improvement in symptoms?

The consultant who dealt with my girlfriends follow up appointment had suggested that it could be at least 6 months before she may feel any difference, which we were fairly aware of.

However, it seems like things have actuallly gotten worse following the operation and coil (nearly 3 months later), did anybody else find it was a case of things having to get worse before they got better?

And finally (I know I'm asking a lot), have any of you that have has success with the Mirena complimented it with anything else that may have helped? I've read a lot recently about a number of different supplements and diets that could possibly help too?

I really hope this doesn't come across as too intrusive but over the years of trying my best to support my girlfriend in her struggle with this horrible disease, I've adopted a pretty direct approach and I'm pretty much desperate to do anything at all within my power to help!

Apologies also for the long-winded post!

May I also please say, to all of you endo sufferers... you truly are all truly heroes for the struggles that you endure on a daily (if not constant) basis.

As somebody that will not ever physically be able to experience or understand your pain, it may seem trivial but I wanted to say that I admire the strength of each any every one of you!

[cmbxm]

can’t help you much with Mirena as I don’t have one, but I’d like to say your girlfriend is so very lucky to have a boyfriend that shows so much concern, understanding and interest as you do! And thank you for being so understanding about her endo, not many guys can do that! 🙌🏻❤️

[Rd93 in reply to cmbxm]

Thank you! It's been a tough adjustment at times but I couldn't imagine doing anything differently.

It's just so incredibly frustrating to see someone you love suffering, knowing that there is no definitive solution and it breaks my heart to see her struggling in ways she never did.

I'm hoping I'll at least get a couple of positive replies about the Mirena Coil, if anything just to help her build some confidence that it may improve over time and that maybe this treatment will be the one!!

[Hidden]

Many women have mixed reactions to the coil. My gynecologist actually advised against it for one of my treatment options due to how bad my periods were. Everyone is different though, I’ve seen more bad experiences than good.

There’s plenty of other options for treatment so if she reacts badly she can always have it taken out and try something else. Unfortunately it’s a trial and error process as it took me a while to find a good bc pill (I now take tri-linyah).

Good luck to your girlfriend x

[Rd93 in reply to Hidden]

Thanks for your reply! I've gathered that it seems to be as you say with the Mirena coil, less good responses than bad...

I think I'm probably a bit too hopeful that this will be the treatment that does the job, but with them needing to leave it at least 6 months, I just hoped there would be some positive feedback to base my support and reassurance on.

Great to hear you have found something that helps! Best of luck in the future!

[luv2017]

Ok I don’t have any advice although I wish I could help this sweet heart . All I can say is you are just amazing and your girlfriend is really lucky to have such a caring boyfriend. I really wish her a speedy recovery and good luck for you future . And hey you Stay like this forever and let all the girls envy your girlfriend 😝😝