Hi, I got a suggestion of endometriosis a few years ago in another country. I had long felt I had bowel problems and did 2 colonoscopies, MRI, and other blood tests which excluded inflammatory diseases and other conditions.
Because of the tiny size of nodules and the pervasive nature of endometriosis my gyn. doctor said is difficult to confirm this but the fact that I started taking Cerazette and it clearly stopped my pain crises testified the possibility. Once she examined me better and suggested it could be a deposit near Douglas Pouch so behind uterus and near to the rectum based on my pain area there.
recently, Another friend who treated in Belgium for this said that bowel-rectum endometriosis can be more pervasive than one thinks and I have had for the last half year bloating, cramping and wind episodes that I can't relate to anything (other medical tests excluded celiac disease etc). someone told me this might all relate to endometriosis.
I have left this matter a bit untouched because it was a rather traumatizing experience to have people calling me crazy about pain - doctors included because they didnt see any reason - and because this contraceptive minipill I take non-stop ceased my pain.
But now I realise I need to see a specialist and have this diagnosis confirmed as it might have spread or be in a total different condition, which was difficult so far due to moving between countries and having had little money to go to a private specialist...
I discovered today the GP might refer me to an endometriosis centre, is this right?, for e.g. UCLH, but I would like some advice then on how to proceed where to go, so I don't have to spend tons of money.
thanks for any kind of advice and help you can give me.