Endometriosis UK
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Abnormally low vit d and folate !

Hi ladies.

Hope your all doing well

As u can tell by the post iv just got back from the docs regarding some bloods that were done to find out the reasons for my aches and pains hands locking etc. It turns out I have really low vit d and folate. The arthritis one came back normal. I asked her if I had an absorption problem she said no (I eat well take whole food vitamins obvs even more so with ttc) She said no my other vitamins are fine.

So do you think this has been my problem this time with early miscarriages?

She's told me don't take the vitamins I'm taking and just the ones she's given me as they are stronger I'm on them for three month.

I didn't ask her because I forgot and other things she we're doing printing out my record and looking into my referrals.

Thanks for any replies in advance

Have a lovely weekend

💗🤗😘

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Hi. If you eat a good diet but your folate levels are still low, supplementing could be helpful but research metafolin, made and researched by Merck, which is an active form of folic acid.. some people (potentially up to 50% of population) genetically have issues absorbing folic acid. With D, there are also genetic links which could make the active form hard to synthesize in the body.. this could mean u might need higher levels and definitely cholecalciferol rather than ergocalciferol. Birmingham test laboratory can be helpful and offer v affordable tests. Also google the vitamin D association for current advice and research.

Endo sufferers tend to have an issue with high levels of inflammatory prostaglandins. This can lead to more pain ans inflammation elsewhere in body. Fish oils can be helpful for this.

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Hi hun thanks for your reply definitely some information to take in when my brain isn't so foggy. My gp prescribed cholecalciferol for me and extra strength folic acid. I normally take folate in my prenatal vitamins there whole food ones as well as my vitamin b complex. It's bizzare. My gp asked me to stop taking my usual vitamins and just stick with what she's given me hopefully will help. I'll find out in three month 💗🤗😘

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selfhacked.com/blog/need-kn...

... for when ur feeling less foggy! Its possible to test for this genetic polymorphism but you will probably have to go to a clinical nutritionist. That's what I did. My nhs consultant didn't actually know about it. Merck is a pharmaceutical manufacturer who fund lots of research into associated issues including potential to affect developing foetus.

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Thank you I was just reading about them. It's very Interesting. Never heard of them before. Did you have this problem with vit d and folate? Xx

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Yes I have 3 out of 4 potential issues with synthesizing D and my levels are stubbornly low. I also have the SNP on the MTHFR. Genetics here isn't definite though, it just tells you you genetically have the potential to have the issue. I do have a daughter and I wasn't at the time supplementing with folate and she was fine. I did have a v good diet back then though. My sister has problems with D and has MS so I do wonder if problems with vitamin D are relevant to my endometriosis.. obviously my consultant says not!

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Wow. It is quite interesting all this it seems that vit d and folate are really really important and being low in them can cause many problems. Sorry you and your sister are suffering with illness 😔

I think I need to emigrate 😆 I'll definitely look into these tests because this really isn't the first time it's happened doc says it's not an absorption problem but my instinct tells me something's not right especially with the constant soft loose stools. Sorry for tmi. You've been very helpful and informative. When my brains up to it I will try to absorb this information you've given me. Have a lovely weekend 💗🤗😘

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No problem. You could contact BANT, ANP or CNM if you want to find a registered clinical nutritionist to help you find answers. Both my sis and I have found alot of info this way.. she is 5 years in and now symptom and drug free! I hope to be there too one day.

Good luck with everything xx

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That's brilliant news and music to my ears. I hope you get there soon too. I'm most grateful for your help I'm very much into sorting the body out naturally. Thank you hun definitely something to take on board 💗🤗😘

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Interesting info Bella29, thanks for sharing. Can i just add that meat is high in prostaglandins, especially red meat. Krill oil is great, agree.

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Its really positive that some tests have flagged issues with may interfering with fertility and causing early miscarriages. I have heard there is a link between low vitamin D and miscarriages so I hope that you have found your answer. Its awful you've had to suffer miscarriages to get answers but I hope with the stronger vitamins that your next pregnancy has a happier outcome xoxo

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Thanks Jess.

The funny thing is it's hasn't been tested due to my miscarriages it's been tested due to my funny locking hands and aches all over body. I'm still waiting on miscarriage clinic appointment xx

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Oh wow that's really weird I assumed it was miscarriage testing.Maybe you wont need the miscarriage appointment because you will be happily pregnant :-) xoxo

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Fingers crossed but if I get pregnant they are going to urgently contact them probs for meds and urgent tests. Xx

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For sure you must do x I test earlier now after my miscarriage- I have to take steroids and progesterone pessaries so I want that to go in as soon as that test is positive to get it the best chance. xoxo

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Yes there just for security isn't it and your raised nk cells. I defo think I need progesterone even the cream I'm using this is my third cycle isn't helping with a rise in my bbt after ovulation my day 21 progesterone test was 34.4 even though that indicates ovulation I think that is real low. Suppose iv got three month to get on top of all this xx

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Sorry just seen this- I think my consultants attitude is taking progesterone wont do any harm and might help the pregnancy along :-) My day 21 tests always were fine- ie I ovulated- but they were like your reading just over 30. As I said taking extra progesterone wont do you any harm and it was me I would for peace of mind xoxo

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Yes I believe that too I'll be pushing for that I think I don't know why but the creams not doing it for me. Maybe I need larger doses but I'm not going to keep guessing it now. Let them do the work. Xx

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Miscarriage clinic just rung how v crazy is that. Two of there appointment dates I couldn't make. Next Friday endo specialist in Manchester and November 10 which is day after my daughters bday we go away for her bday. So my first app is November 13 my nephews bday haha early morning one 💗🤗😘

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That is wonderful timing :-) So happy for you. November 10th is my birthday :-) All the best for your appointment I hope it goes well :-D also hope your daughter has a lovely birthday xoxo

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I know hopefully I'll have a good new year surprise and bday present.

Happy bday for the 10th 🤗and thanks she'll be 4 💗🤗😘

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I am sure you will be - I have no doubt I will hear some happy news soon from you. you can conceive you just a little support during early part :-) Although my miscarriage wasn't the outcome I wanted it did show me we can fall and after 6 years ttc with no success it gives us much more hope taking good from bad :-) I am testing tomorrow morning when I'll be 12 past ovulation I am bricking it! No blooded discharge yet which I normally have by now. At least I'm ovulating again and I will keep trying till it happens :-)

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Yes your very right. The fact we can conceive is massive. Same goes for you. Great you haven't started spotting my last two I would be spotting 12dpo. I stupidly marked my period on my spotting days and expected to ovulate a day after you. I ended up ovulating last sat I haven't even bought no tests I don't see the point now iv got these deficiencies. I might get some internet cheapies.

Oh gosh good luck for tomorrow hope it's a bfp 💗🤗😘

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Thank you :-) Clear blue says tomorrow is the soonest I can detect a pregnancy. I will keep testing till I either get a positive test or my period shows up.

How long should the vitamins take affect? xoxo

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Sounds sensible hope the wicked v witch doesn't arrive. Iv got to take them for three months then re-test bloods not sure if they'll take affect before that guess it's something I need to ask 💗🤗😘

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I have tested- negative. Still no sign of period no pre period spotting which id have by now and will test again on Tuesday when my period should be in full flow providing the witch hast got me. I said to my husband the whole time period isn't here there is hope. If the period we start again and at least my hormones are working well since my miscarriage. xoxo

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Ohhhhh the fact you period hasn't arrived (spotting hasntv arrived is quite exciting ). Really hope Tuesday is good news. I'm actually daring to hope iv woke up with sore boobs and my temps have been rising for past three days. I no it's highly unlikely but I'm daring to hope 💗🤗😘

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Oh that would be brilliant :-D I am now wishing I kept a temperature chart! The whole time the period isn't here there is hope- that's what I'm telling myself. Hope is the only thing that keeps us going :-D When are you testing? I could say the same its only the first month proper month of trying( first month I detected my LH surge) since my miscarriage- at that point I was just grateful to be back to normal! Waiting sucks. Do let me know you get on I have everything crossed for you xoxo

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Thanks hun

Its true while thev witch is away hope is at bay.

Temping is quite good you learn so much through it that's how I realized my progesterone is low (although endovsufferes tend to have estrogen dominance ) temps just helped confirm and the recent progesterone test.

I only started using opks this month I always know when I'm ovulating just thought I'd get them to confirm I'm right.

If my temps continue to rise I'll start testing from 10dpo which will be Tuesday with internet cheapies my cycles 28 days so gives me 4 days. Wish you all the best for then💗🤗😘

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Still no sign of my period- I have taken steroids this morning just in case there is something there that needs protecting. Its unlike me not to be spotting- its now cd27- I always go in full flow cd28.

How is the temping going?

It is useful to know when ovulation is occurring- especially for pregnancy testing. And to know we are trying when it matters the most xoxo

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Oh gosh you've basicly got tomorrow and you should know either way. Fingers crossed.

Iv only come up to my mums to stay for a bit and I thought I packed my thermometer but I can't find it any where so guess I'm just going to have try to wait and see.

Good luck hun 💗🤗😘

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Thank you .

Urgh I got a negative today.

I still have no sign of my period which is very odd as my cycles are exactly 28 days. Today I should be in full flow.

I can't understand it.

I guess I'm not completely out until my period makes an appearance- surely if I'm not pregnant it'll be here soon.

If by some miracle my period is still a no show I will test again on Thursday.

I think I need my answers either way- either a positive test or a period.

How did you get on today? xoxo

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Hi hun

How annoying is this for you I thought you'd have known today either way. 😕

Well I found my thermometer unpacking the rest of my stuff so did my temp this morn AG's it's first time it's gone over the cover line on my app so I'm real shocked. I haven't got tests yet I forgot to order some I ordered some last night so should be here Thursday. I might use one of my opks because they pick up hcg tomorrow.

Gosh wonder what's going on with you. 💗🤗😘

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Thank you. I guess I'll have to sit this out a bit- it's really not like to miss a period and my cycles are very regular to the day. Until my period shows up I will have hope. If no period by today of tomorrow I will re test on Thursday. It's very annoying not knowing either way- thank god I'm pretty busy- I work two jobs and run my house or I'd be going out of my mind 😊 I'm taking the steroids until I know I'm not pregnant. I'm not taking progesterone until I know I am because that can delay a period.

That's amazing with your chart I really wish you the best and really hope this is your time. I'm sure with the vitamins you've been prescribed will keep your precious cargo safe 😘

Do let me know how you get on x I have everything crossed for you xoxo

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Thanks. Bless ya hun well latest you can Implant is 12dpo so 4 days to get hcg flowing hopefully Thursday will def be able to give you a positive If the witch hasn't arrived.

I know it's quite a shock but really don't want to get my hopes up high due to my deficiencies it's quite scary to think if I am. I'll have to phone docs straight away and get monitored which will totally stress me out. Either way I'll find out. Stressful times really is.

Good luck for Thursday hun 💗🤗😘

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I know that one so well. It's so hard when you want it so much. Hope keeps us going.

I still have no period or any sign of it. I'm now 15 days past ovulation. The only reason I can think to miss my period is pregnancy- it's the only time I've ever missed periods- both times I was pregnant with my son and my recent loss. I'm very lucky I have regular cycles- even straight after my miscarriage my cycles went back to 28 days. Until my period shows up I'll have hope- otherwise it's hope for next month 😊

When are you testing? xoxo

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Still no sign hun? Oh gosh this is getting frustrating. My temp dropped a bit today so don't bknow what to think I'll be testing soon as my tests arrive.

Good luck for tomorrow hun. 💗🤗😘

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The witch got me- after I brought the tests. I feel such a twat to even think I could be pregnant. I hope you have better luck xoxo

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Ohhh hun. That's not good news. So sorry to hear that 😔 hopefully better luck this cycle.

I'll let you know how I get on although I don't think it's good news iv been cramping all day 💗🤗😘

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Cramps sound like magnesium deficiency, AllWeNeedIsluv. Hope you feel better soon, take care x

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im sorry to hear that- sometimes it does feel like a period but turns out to be a pregnancy. When I fell In July I was certain my period was coming- it's impossible to tell them apart. I really hope it's your time ☺️

I've had to see a dr today as my bowels have been very severe and this morning it was a serious incident. I'm being sent for a scan and I'm going back to the doctors- regardless of results. She says she'll send me back to my gynaecologist- im convinced my endo is back. My gynae has not bothered to reply to my letter two and a half weeks later- it's crappy but hopefully GP is on the case. X

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Awful isn't it I tested today negative. My bowels have been horrific recently too. I'm so sorry to hear that Jess. I know my endo is back also iv got my endo specialist appointment tomorrow so hopefully will get somewhere. Fingers crossed. The both of us. I hope you get answers soon it's the most frustrating thing ever. Iv had some really horrid embarrassing bowel problems I know how you feel hun. Be strong you'll get through it. Wish you the best if luck 💗🤗😘

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All the best for today I hope the appointment goes well.

Was your endo in the pouch of Douglas? That's where mine was.

Endo is such a crappy condition to have xoxo

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No just on pelvic side wall. Thanks hun got a bfp today I know I'm gonna loose it I'm scared stiff xx

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Oh my god that is wonderful news. I am so happy for you- I'm sure the vitamins will keep your little one safe. Wishing you the very best xoxo 😘

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I wish I could say same Jess it's not even like I can get to drs today 😕 thanks though xx

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Cramping in tummy like AF is coming. I use magnesium baths all time xx

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