Could cry!!

[Hutchy79]

Well that gynae appt didn't go exactly how I wanted it to go, after waiting an hour to see consultant (which didn't bother me I understand they run late), she asked me how I was with the coil and said she couldn't understand how it had came out, I explained that I still bled and was in pain to which she couldn't understand either, her next question was if I wanted ablation in an outpatient appt to which I said I would prefer GA which she agreed to do so I was quite happy and feeling optimistic by then, I then thought I would tell her AGAIN that bleeding wasn't a problem I wasn't heavy it is the pain I can't deal with anymore, I mentioned also that I get a lot of pelvic pain which is mainly where my pain starts in the pelvic region on my right side (I had previous ectopic so have no tube on this side), it was then she seemed to turn into a completely different consultant and insinuated that the pains were in my head!!! To which my husband in no uncertain terms told her that he watches me go through this every month they are definitely not in my head, she then told me that from now I can't fall pregnant and she wanted me on something to stop that happening other than condoms that we us, I'm 35 yrs old I suffer with osteoarthritis in my legs and hips which means I fall a lot, I don't want anymore children is wouldnt be safe for me to go down that route, condoms are just fine for us to use because pregnancy ain't going to happen, I was quite shocked she said that, she then suggested a 3 month injection of prostap as if have to wait till July for my op....... So not only do I feel she insulted me twice she then said she'd give me a diagnostic laparoscopy with camera but if she finds anything she won't act on it and most women just come to terms with the fact nothing can be done...I feel totally upset that someone could think that I am making the pains up and think I'm not grown up enough at 35 (married with a 14yr old) to stop myself from getting pregnant!! My husband has said that he thinks we should ask for a second opinion but I'm thinking will another consultant offer me exactly what this one has, im at a total loss all I no is I can't keep doing this every month, it affects my life for 2 weeks out of the month surely this isn't normal and I shouldn't need to put up with it!! so sorry for the long message X

[Hidden]

No women should be treated so badly that they cry at a consult - not being understood. I bled thru my clothes 2 weeks every month and was in bed, Before total hysterectomy. Go for 2nd opinion. The docs have consensus so they never go against another collegue. Who wants an uninterested doc operate on you?

No thanks! I would rather change hospital doc to one that will seem interested with helping out with future surgery. I would never let someone who hasnt your best interest in mind operated or help me out.

Even if you get a good second opinion - I would search for a kind, helpful hospital doc,

[Hutchy79 in reply to Hidden]

Honestly the more I think about it the more shocked I am x

[victoria044]

Hello Hu, I am utterly appalled by the way your consultant treated you today. Unfortunately there are good doctors and bad doctors. My advice to you and your husband is to seek a second opinion. Do you have an understanding gp? If not find a new gp as well! Where abouts are you? And do you have an endo center near you? Was the consultant you saw today a general gyneacologist? I have had to get second and third opinions and have now got a senior endo specialist. It can take a while to find an understanding doctor please don't feel you have to make do. If I can give you any more advice pls message me. Hugs and think you guys deserve a big glass of wine!!!Xxx

[Hutchy79 in reply to victoria044]

I'm going to make and appt with my gp and take my husband along, I'm going to ask to be referred to a different hospital too, I just keep thinking if it was in my head why would I need to take the pain medication that I take, ooooh I'm so mad, I live in Sunderland UK, I'm not sure if we have an endo centre x x

[victoria044 in reply to Hutchy79]

Just had a look and yes you do have an endo center in Newcastle if that's not too far from you? Have the number if you want it or look at bsge.org.uk xx

[Hutchy79 in reply to victoria044]

If you could give me the number that would be fantastic, I no this might make me sound thick but what would they do x x

[victoria044 in reply to Hutchy79]

Call them and ask ifbyou can make appointment to see one of the consultants either privately or with a gp referral. Also explain your symptoms etc and the problems your having getting treatment. Then you and your husband go see your gp and tell him/ her to refer you to the center to see consultant. Explain.to your gp you have already spoken to the center. Number is.01912825865 best of luck xx

[Hutchy79]

Up since 2:30am in agony and I only took my pain meds at 12:30, more pain meds taken and it's now 4:48 and I've had no let up from the pain, I've had to come downstairs to the sofa as I'm going to wake my poor hubby up pacing the floor but no doubt when he wakes and realises im not in bed I'll get told off for not waking him up, aaaaarrrrgggghhhh I give up, I'll say what I always say "I can't keep doing this" x

[will-EndtoEndforEndo]

Hi, Amy and I had a very similar situation with a consultant at one point and it felt like we where being pushed out the door as he had a tight schedule to keep. We weren't getting any answers so I ended up paying for a private consult out of desperation to have a full conversation with him, but really didn't get any more information from him. We have gone on to fight for a second opinion, and got one. The new consultant seems to really know his stuff and is also sympathetic with the condition which is a refreshing change.

Couldn't agree more that 'just deal with it' is an answer? there isn't many other conditions in the world that this is allowed, so why should it be with Endo?

[Hutchy79 in reply to will-EndtoEndforEndo]

I totally agree and really couldn't believe she said that, to be honest I just wanted to get out of there cause I could feel my husband starting to lose his temper which I don't blame him for at all, he was just trying to protect me and was disgusted with the consultant x

[Hutchy79]

Thank you so much Linda, I'm ringing my GP first think Monday morning, I've had a really bad so again plains are out the window for today x

[Hidden]

Second. Opinion. This is not on! Where are you? Maybe others can suggest someone. Hang in there

[Hutchy79 in reply to Hidden]

I live in Sunderland, I lovely lady on here has let me no there is an endo centre in Newcastle x

[Hidden in reply to Hutchy79]

Go for it

endometriosis-consultant.co.uk looks fab.