Endometriosis UK
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Pain when needing a pee

Hi ladies, recently I have developed a new pain and was wondering if it's linked to my endometriosis. When I need to pee my stomach is in agony, and is also in agony for quite some time after I've peed. It feels like my stomach is on fire and am getting stabbing pains too. I also need to go the toilet ALL the time. Any advice would be greatly appreciated!

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I had these symptoms too lovely, I did have endo but waiting on my biopsies on this from the Doctors for my cystoscopy. Bladder check. The consultant did stretch my bladder and take biopsies so they may suggest this too. It’s nothing to worry about just a check. But definitely mention to your consultant as I’m still waiting for confirmation if it’s linked. Massive hugs Hun.xx

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I get this, I'm waiting for surgery right now, I just find it easier to go before the pain gets too much! It's unbearable sometimes!😫

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I find it's at its worse first thing in the morning I wake up in really bad pain 😢but through the day I try to go before I'm bursting to go to try & calm it down.

Hopefully you're not too long waiting for your surgery now 🤞🏽 xx

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Just over two weeks now thank you! Mornings are so much worse! Also got to a point now where I'm waking up 5/6 times a night! I'm really restricting fluids at the moment so I've gone from drinking 4/5 litres of water and other drinks a day to drinking 500mls/1l just to avoid the broken sleep and pain! xx

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Hope the op reduced the pain for you 🙏🏽

I'm the same I wake quite a lot through the night. I have to drink as the co-codomols make me so dehydrated 🙄 xx

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Oh god that's even worse when you have to drink because you're medically dehydrated! 😩😩 x

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YeH, the cocodamol really makes you feel parched.

For bedtime, stop taking full gulps about two hours before bed. You can still take small sips to quench yourself, but don't chug like you might normally. That'll give your body time to get the day's liquid out so you can sleep more peacefully. No need to deny yourself liquid during the day, just restrict a few hours before bed. Stay hydrated, ladies! 😊

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Might try that as I know it's so bad to restrict fluids! X

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I will definitely try this to see if it helps! Xx

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Hugs, stay strong. It is unbearable. I had a couple of stingy wees after lap but that’s because I had a cystoscopy to check bladder and sort it.

I hope the lap etc works for you too. Hugs. Let me know how you get on😘.

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I have this too, but I also find it really difficult to pee. Even if in bursting I have to really concentrate, otherwise it won't happen.

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I’m exactly the same with this. Especially the finding it hard to pee... have to really concentrate. The pain is immense like a sharp stabbing pain and as if everything is swollen and inflamed xx

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So it's likely it's related to the endo then! It's nice to know I'm not the only one with this pain. I don't know about you but I sometimes doubt myself and Just think is it all in my head or am I just being over dramatic. No one really understands apart from you ladies on here going through it as well xx

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Im the same. I did have endo on bladder that was removed but come straight back. Im awoken 2, 3+ times a night. Holding a wee results in pain so bad i sweat from every pore, rocking and swearing. It then, like you cripples me for hours. Ive had to pee myself before now as the pain was just too bad!

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Sounds awful. I'm the same I cannot hold my pee my stomach just hurts way too much. Xx

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Hi I'm the same and also wet myself it just happens so embaracing 11 years

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I am waiting for an ovary switch off my fibroids are in my womb and endomtriosis is bad they can do it key hole so i have to be cut open but can't afford to take time off as I'm.self employed any 1 else had the Injections in pain ALL the time 😥😣😣😣😣😣😣

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No body underatands they LIKE why r u tired they dont know the half of it i am so depressed right now

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Hi amyleigh

Have u been to have a check with dr u not got a bladder infection ?

Also i found that mine was the muscle releasing as it couldnt coz i was in so much discomfort all time, so i found a pelvic floor specialist, they work internally which seems weird but actually is a blessing, i couldnt wee or poop i was in pain all morning and it was just because i couldnt release my pelvic floor( it was so tight) i have since had 3 sessions and oh my god the difference! Its amazing....

The therapist was telling me we tend to hold our stress in our vagina if we have gynae related problems so we get very tight which will give u wee poo probs pain in belly, hips and buttocks and i had all this and in three weeks it more

Then 60% better?

So see if u can find one. Also my periods are

Easier as im not so tense

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I am going to see my GP on Monday to see what they say. Am also waiting an appointment with my consultant. X

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Where do you find a pelvic floor specialist?

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You have to google it, i was lucky there was one nearish where i live. I know there one in london a clinic. U just have to do ur homework and google it to find one...

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Agree with the hydration 😊. When I had this pain I drank more weirdly. If I kept hydrated it was still a struggle to wee but not as much because I could release some at the same time with the pain. When I wasn’t drinking as much as was worried, I found it more painful because my body was pushing to get no urine out. I had no output.

It could be an infection and it’s worth getting it checked, as my symptoms were not.

Stick a bit of cranberry in the water too, I had slight pain after lap and drank cranberry and water after. I hate cranberry juice so diluted it 😂. These don’t seem like urine infections so could all be a placebo but I liked drinking it because I knew it would help me somewhat with my bladder and bowels. (Docs said bowels, I didn’t know that).

Sending you all lots love.xxx

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They may check your bladder capacity too Hun. Not a bad thing you just may have a small bladder. They stretched mine whilst under ( this didn’t cause me problems after and nothing to worry about) it could be something as simple as that 😘

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