Recently diagnosed, any advice appreciated :-)

[Disco83]

Hi everyone,

I am writing on here as I feel like I am going insane. Short story is we were due to start IVF this month after nearly 2 years in fertility system. However in the last 6 weeks I have been diagnosed with PCOS and endometriosis (this had been missed, long story!). The endometriosis is deep pelvic endometriosis and endometrioma (found through MRI). The consultants want it treating with surgery. Does anyone know if it this kind of endo is straight forward laparoscopy and idea how long will I be looking at waiting on the NHS? Any advice much appreciated TIA x

[Hidden]

Hi yes I had endometrioma drained under laparoscopy they will need to do that before IVF I would guess, waiting lists vary around the country I had to wait three months on NHS having op Thursday to drain second endometrioma last one was 17 years ago fingers crossed I'll not have another before menopause I also had endometrioma deposits on both ovaries. Good luck for your IVF when you have it the surgery will help your chances of success so hopefully it will all go well x

[Disco83 in reply to Hidden]

Thankyou and hope it goes well on Thursday xx

[Hidden in reply to Disco83]

Thank you but found out today it's postponed a week due to consultant sickness will now be happening August bank holiday weekend 😒

[Disco83 in reply to Hidden]

Oh no that sucks 😦😦 sorry to hear that xx

[Hidden]

Just wanted to stop by to wish you luck. I've been recently diagnosed with PCOS and endo as well so I know how it feels.. xx

[Disco83 in reply to Hidden]

Thankyou 🤗. I had gone from having nothing and all ready to start ivf and then all this. It all makes sense now but I am also angry as I have had severe pain and was told it was normal😦xx

[CLN1986 in reply to Disco83]

This is awful! They got you all excited to start your IVF journey to then put it on hold Coz they finally found something! Grr! We've been TTC, and because of this had tests, then I had a lap and they've found endo. So that needs to be sorted before IVF. Hopefully you won't have to wait long to see someone x

[Disco83]

Well we were under another clinic for just over a year until April this year. They didn't investigate anything despite me telling them about pain and they queried cysts but only ever had 2 scans. They put me on clomid. I ended up in urgent care 3 months later and got told I was constipated and given buscopan. It was actually the endo i know now. They didn't scan me or anything. I never compain but I think I will be on this occasion. The physical and mental pain. Was told no reason couldn't get pregnant was testing every month etc etc. My husband thinks I should be happy now they have found it but it doesn't take away all this for me if that makes sense. Sorry rant over ha xx

[CLN1986 in reply to Disco83]

Yeah I hear that girl! In one way your husband is right (men are always to the point!) but at same time he's got to realise just what you've been through already. We are here for the rants at any time Hun