Recently diagnosed with endometriosis

I was only diagnosis with endometriosis on Thursday just passed and I'm waiting for an appointment for my surgery however, I am in a lot of pain and struggling to do Day-to-day activities and find myself sleeping for ridiculous amounts of hours some days because of the exhaustion of being in pain constantly.

Has anyone ever been signed off work due to a lot of pain from the doctor or just had to take sick days? I can't see myself being able to go back to work tomorrow because of this pain and still trying to deal with being told there's a good chance I'm infertile.

Any responses would be appreciated.

Thanks

15 Replies

oldest β€’ newest
  • Hi

    Yes i have had to take sick days due to pain usually 1 or 2 per month i normally just self cert for a few days and then i am ok but if you feel you need longer see your doctor and get signed off, allow yourself time to rest and recover x

  • Thanks for your reply. Seems like such a stupid questions to ask about sick days etc. but I've never had anything like this before and unsure about it x

  • No its not a stupid question at all i was exactly the same when i first needed time off i was really worried about it but i spoke to my manager i explained what i was going through and that i was waiting for my lap and they were really supportive i just keep them updated with my appointments and outcomes etc. If you feel you have a supoortive manager try talking to them about it as many people have not heard of endo and it may help them understand a bit better x

  • That's a good idea, thanks for your reply and sharing your experience with me. I'm a bit worried about it too but I guess the best thing to do is just tell them about it xx

  • Hello Dear,

    First I am sorry to hear that you are in so much pain. Having endomitriosis as well, I know how you feel. When I am in excruciating pain, I usually have no choice but not to go to work and basically sign off of everything else for a few days. I really believe that endomitriosis should be considered and recognized legally as a disability as it is really disempowering at its worse. All that to say that, if you are in pain and feel like crap, there is no need for you to go to work. You wouldn't be able to concentrate and work effectively anyway. I've lost a couple of jobs in the past due to my condition. Mostly because people thought I was making it up. In the end it doesn't matter what others think. It is your body and you are the one feeling the pain. Just take care of yourself and do what you need to do for you and your health. I am not sure how bad your endo is, but I have heard and witnesssed women still being able to reproduce while having the condition. With a good team of doctors and the right moral support and energy around you, anything is possible. I am myself trying for a little one. Don't give up and keep your head up. Best of luck with everything. God Bless!

  • That is so lovely, thank you for your reply, you've really lifted my spirits and I hope you're doing well and you get your little one! I think I'll be phoning my GP tomorrow as the pain is spreading to my hip and down my leg. Wish me luck! Xo

  • Iv been signed off work for a year nearly. Iv had the laparoscopy but it hasn't helped for me so I'm seeing my gynaecologist next week to see what can be done next..just go to your gp, endometriosis would be in your records. Explain you won't be able to do your job role as of pain and not sleeping...they may only sign you off for a week...but after that week is up and your still in pain, gonvack to gp and be signed off again and so on.

    Hope this helps. Message me if you have any questions

    Emma xox

  • Thanks for your reply Emma. I'm waiting for my appointment for my laparoscopy and I'm worried it won't do a lot for me either, I've been 3 years undiagnosed so goodness knows what it'll look like now! I hope you're doing well and are on the mend, I think I'll definitely be phoning my GP tomorrow as the pain has now spread to my hip and down my leg! XO

  • I have taken sick days. Only 2 so far. But I'm very patient with my pain.. i will take co codamol and go to work. I have given all app letters to my manager so he knows that there is a real reason for me not feeling ok..that i just don't pretend.

  • Co codamol is the only thing that eases my pain but it makes me so drowsy that I couldn't go to work after taking it :( I just get really worried about work and sickness etc. it's a difficult thing to try and deal with. Thanks for your reply, I'll just be upfront and honest with my work!

  • Questions to ask your doctor:

    ============================

    You may think that if you become ill you just go the doctor and they give you a drug to take away the illness

    What if your Endometriosis is caused by things that you eat, or don't eat ?

    Here are some questions to ask your doctors about Endometriosis

    * What causes it ?

    * How will looking at it and scraping it help me get better ?

    * Could my illness be caused by things that I eat, or don't eat ?

    * What can I change about my diet and lifestyle to help my body repair itself ?

    These are easy questions to ask but very difficult for doctors to answer, as they know very little about Nutrition.

    It may be worth asking them to refer you to a Dietitian or a Nutritional Therapist, as they specialise in Nutrition.

    If your doctor won't do this, try a search for BANT at bant.org.uk/bant/jsp/practi... and interview 10 local Nutritional Therapists who have had success advising about Endometriosis before choosing which one to work with

    Here are 3 well-proven natural ways to reduce the Inflammation that causes the pain of Endometriosis

    * Increase your Vitamin D

    * Increase your Omega-3

    * Reduce your Omega-6

    Here are some relevant references that may be useful to you:

    Vitamin D Wiki

    vitamindwiki.com/Endometrio...

    Optimise your Omega-6/3 Ratio

    authoritynutrition.com/opti...

    How much Omega-3 ?

    chriskresser.com/how-much-o...

    15 Omega-3 Foods

    draxe.com/omega-3-foods/

    What to Do About Inflammation ?

    greenvits.eu/blogs/news/900...

    Expert Omega-3

    expertomega3.com/omega-3-st...

    Some people have reported that eating specific foods like meat or dairy gives them an instant flare-up

    Which foods make your Endometriosis worse and which help ?

  • My doctor thinks I have endometriosis and today I had my appointment with the gynaecologist who has put me forward for a laparoscopy. I too have been waiting for 3 years for a diagnosis and am currently off my work with a doctors line due to the pain. This is my third period of sick leave in a year due to pain, I've been prescribed very strong tablets to try and control the pain. As the others have said, just be upfront with your boss and keep them informed with appointments. My work have been really good with me, letting me go in later or home earlier if need be. Hopefully your boss will understand x

  • I think I will definitely be taking a trip to the doctors tomorrow as I can't sleep & can hardly walk with this pain. Hope everything works out for you x

  • You too, hope you get on okay tomorrow x

  • How are you now Kittyyy123 ?.

You may also like...