Any help/advice would be greatly appreciated!

[Solow2802]

Hi everyone! So I’ve got myself into a really low state today and feel that I don’t know where to turn! I’ve had 2 laparoscopies, latest one shows uterus completely stuck, chocolate cyst and possible deep infiltration in the bowel. Gynaecologist has recommended Hysterectomy with potential bowel surgery. I feel scared to have this op. Gynaecologist recommended I go away and do my research and make up my mind in a couple of weeks. Anyone been through similar and/or decided against surgical intervention?!

Blasted endometriosis - it’s an absolute nightmare!

Thanks everyone!

[PopcornPJ]

I hope they were more empathetic about it. It’s a big decision and surgery! Do you mind me asking how old you are? Because a hysterectomy is a big deal, especially to premenopausal women. I have had a lot of dealings with doctors recently and big decisions to make and it is SO important to have a consultant who is both knowledgeable AND can communicate their knowledge well to the untrained. It is not about the outcome - if it’s the best thing for you, the recommendation will remain the same. But it matters how this was explained/talked through.

[Solow2802 in reply to PopcornPJ]

Thank you for your reply Popcorn. I am 44 next month. The Consultant is an endo specialist at an approved BSGE centre so I feel confident in him . however, I guess I feel disappointed that I haven’t been given any alternative options - perhaps there isn’t any and I’m simply looking for something that doesn’t exist!

[PopcornPJ in reply to Solow2802]

It is worth asking though. Would hormone treatment, for example, relieve symptoms? What is best for you and, my favourite question: what would you do? (If they’re a man ask what they would recommend their wife/daughter to have).

[Solow2802]

absolutely! I will definitely ask that question. My understanding is that hysterectomy isn’t always the answer! Thanks again Popcorn!

[RosieFalkor]

I’m 45 and I’m having excision and total hysterectomy in a few weeks. Yes there are drawbacks but there was research just last year demonstrating that those of us with Endo are 10 times more likely to get ovarian cancer. I want my ovaries out now. They’ve done what they needed to do and times up!

[Solow2802]

Thank you Rosie. Yes, my consultant mentioned that about the cancer. He also said the return of endo rate is only 2% which sounds good!