Any advice greatly appreciated: Ok I will... - Endometriosis UK

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Any advice greatly appreciated

charlmarie profile image
6 Replies

Ok I will try to keep this brief,

I was diagnosed with endo after lap in December 2013, was found to be very severe and my surgeon decided it was too diffuse to lazer anything, so I was fitted with the coil. This didn't help with the pain, although it has now stopped my periods, witch is quite nice. I was then put on prostap with add back hrt, I am just coming to the end of 6 months of it, this doesn't seem to have helped either! Have just suffered with bad mood swings and depression so not great! I have just had an appointment with consultant and basically been told there is nothing more they can do (until I have kids) im 23 and although im in a long term relationships we aren't ready for children. So im in a bit of a dilemma, no painkillers seem to touch the pain, so there's a dead end. I have read a lot about the endo diet? Can any one tell me if they have had any success with this and excercise? feel like im hitting my head against a brick wall so any comments would be really helpful right now ...

thanks charl xx

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charlmarie
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6 Replies
Petunias profile image
Petunias

Hiya. Have you been referred to a specialist centre yet? Incase not the link is bsge.org.uk . A really useful website for the endo diet is endo resolved by caroline levitt but tbh until you have your endo actually excised by a specialist endo surgeon it will always be there potentially causing problems. An endo specialist will be able to deal with severe endo so its definately possible :-) good luck & I hope you get some relief soon x

Shehulk profile image
Shehulk

Really sorry you are feeling like that. I started the endo diet 5 weeks ago, I have stopped eating gluten, dairy and read meat and started having more vegetables. I’ve just got my period yesterday and it has been significantly better than before. I feel almost normal, I can’t believe it! My pain is manageable and I had no other symtoms (before I used to get loads of nausea and fatigue, as well as pain). I know it does not work for everybody but I think it definitely worth a try, you have nothing to lose and it might help you symptoms.

Wind_mill profile image
Wind_mill

Hi, I have now been on a diet for 4 weeks after going to see a nutritionist and have not had to use any pain relief since. As someone else has said, I have removed caffeine, gluten, wheat and sugar from my diet. I no longer have headaches and no longer have pain when going to the toilet. I am already vegetarian but have upped the amount of green veg I eat and the amount of nuts and seeds I eat. I exercise 3-4 times a week and find this really helps although sometimes I can get backache (doesn't last long and more muscular in nature). I am thinking of trying yoga as that's meant to be helpful. I was diagnosed with severe in January and this is the

Best I've felt since.

Franchie profile image
Franchie

This is amazing!! I've been reading books about natural healing through nutrition and gentle exercise and it has had such good success rates with case studies. I've started to try a similar thing, so good to see someone having good benefits...keep positive stick with with :) x

charlmarie profile image
charlmarie

Hey thanks for your replies, I haven't been referred to an endo specialist but if I can't cope on diet and excercise I will push for it! im willing to give it a good go! Just a little bit of a scary thought at the moment.... the positivity is lacking today.... :(

Wind_mill profile image
Wind_mill in reply tocharlmarie

If you want any other information let me know. I have also been on 6 months of zoladex with hrt and felt emotional throughout, I opted to come off them after 6 months and that's when I started the diet. I went to a local university nutritional clinic which meant I only paid £15 for 2 sessions but have found the information I got so valuable. I don't know if they do this at other universities? The book I was recommended was henrietta norton - taking control of endometriosis - really good and was recommended by the nutrionist. The author is a nutritionist who also has endometriosis. Good luck. Hoping tomorrow is a better day for you

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