Feeling depressed

[Gemma8869]

I cant put up with this any more. Im in constant pain, tired and depressed all of the time. Im 28 and researching a hysterectomy to stop me feeling this pain. I want children later on in life but after having 2 miscarriges and how the endo is i can never see that happening. Will my depression go away if i accept the fact that i can never be a mum and opt for a hysterectomy. I need some advice please

[Starry]

Hello Gemma and lots of hugs for your pain. X x x x

28 is young to be going down the hysterectomy route. I have a friend who only had a child last year at 40 after a decade trying and one full term miscarriage and since had a second child. the odds long term are better than you may believe. If that is your only reason, try not to give up. Equally it is possible to come to terms with childlessness without irrevocable surgery

endometriosis.org/endometri...

If it is pain think it through very carefully as it is an irreversible step. I would try a GnrH experiment to experience how you may feel after if you are also thinking of ovary removal.

There are also substantial health risks with early hysterectomy to weigh up against the severe pain you have.

Be aware that hysterectomy is not guaranteed to remove pain in all cases although it does in a good number , as adhesions and nerve damage for example can cause ongoing pain, and some endo types can generate their own oestrogen apparently and continue, so complete excision is also needed.

I joined a hysterectomy forum as well to help me decide. Hystersisters is one such. Some links are below

endometriosis.org/treatment...

The hysterectomy pack from endo UK

endometriosis-uk.org/public...

hystersisters.com

Good luck in whatever you decide, but be sure to be very settled in your decision before proceeding.

[Caranne in reply to Starry]

Hi Starry

Thanks for your post the link was helpful.Ive been having prostap injection for 3 months now.Initially I was managing really well but after the 4th injection Ive had terrible mood swings and feel exhausted most of the time, considered stopping it but going to try and put up with it for a few more months.Im not sure what the plan will be after the 6 months.

I'm sorry your feeling like this Gemma, I know exactly how you feel.It can feel completely exhausting and overwhelming when your trying to manage the pain and exhaustion every day and it feels like no one is going through the same thing x

[Ollie2512]

Im on depression meds. Im nearly 36, no kids, but at my next surgery in 2 weeks im getting endo ablation and tubes tied to try and improve my heavy bleeding and severe anaemia.

I am so sad that i have to choose quality of life over babies but i do - i can always adopt or fostwr in the future, and if i try and improve my health and quality of life, i will be in a better position to do it.

I have other awful health things apart from the stage 4 endo and have had a lot of dark and intrusive thoughts of late. But im calling hotlines and journalling and have a lot of optimism about my next surgery.

My best advice is - this sadness is so deep, but reach out - find other endo sufferers on instagram, talk to ur doctor, get meds, go for walks, journal, get a cat, cut back on alcohol, call the hotlines, find a counsellor - literally fo all you can, every day, even if its only one thing a day.

So many hugs.