Light at the end of the tunnel? - Endometriosis UK

Endometriosis UK

70,527 members52,075 posts

Light at the end of the tunnel?

3 Replies

Hi Ladies

I wanted to post this to try and give some positivity and hope to some...

I was diagnosed with endometriosis last May 2016 after experiencing and secretly coping with the symptoms myself for many years. I had a diagnostic laparoscopy in August which confirmed I was riddled with it, and was put on prostap menopause injections whilst I waited for the next op to remove it all. I read a lot of horror stories about prostap but apart from the hot flushes I actually felt amazing on them & I was completely pain free!

In November 2016 I had the endometriosis removed and was put on the pill (with no breaks) to hopefully keep the endometriosis at bay. But 10 days after the op I was experiencing terrible endometriosis pain and it became more and more regular. I was devastated. I experience endometriosis pain after orgasm as well and it was starting to take over and really affect my life. It was hard to stay positive.

I decided to seek a second opinion after waiting for 3months, and the merina coil was suggested. Again I had read loads of horror stories but this has completely worked for me and I wanted to share this with you and let you know in case it helps someone else. I did have awful period pain like cramps for a few weeks and bleeding for a few weeks but I have had no endometriosis pain! It did take a few weeks but it has worked for me, and I am excited and hopefully to be able to have a pain free life for a few years at least!

I really hope this helps someone else as I know how hard it is to live in pain and feel like nothing can be done to help you, and know how hard it is to stay positive.

Read more about...
3 Replies
WantToChange profile image
WantToChange

Thank you so much for this. I'm truly happy you found something that works!

I've been on the coil for 4 weeks now and still struggling but GYN wants me to persist. So only time will tell.

in reply to WantToChange

I did start to panic that the coil wouldn't work - I had cramping, bleeding and my lower stomach felt quite swollen but it has worked out and completely settled. I really hope it works for you and have my fingers crossed.

WantToChange profile image
WantToChange in reply to

Thank you very much :). Only time will tell x

You may also like...

Hint Of Light At The End Of The Tunnel

to, if i still couldn't cope with the pain after all the meds had kicked in. So i shall let you...

Light at the end of the tunnel?

loss in my lower spine, so had to stop the Prostap injections. I have had 2 periods, the first one...

There is light

adenomyosis and possible endometriosis, so on the 10th of this month i had surgery on the hope to...

What stage is my end?

realised this was not mentioned when i had my consultation. I am waiting on a date for surgery and...

End of prostap injections

back normal and iv been vertually pain free and not had to take any pain relief not even...