Endometriosis UK
34,739 members30,979 posts

At wits end

I was diagnosed at the age of 18 with a laparoscopy, this was because I had heavy periods and pain during sex. I was told it was mild and so was put on the pill. Well it might have looked mild but the pain continued to be awful during sex and my 3 monthly periods. I was also told to lose weight as I was about 5 stone overweight. I did this and got to a healthy weight, which didn't help but the exercise helped with the low feelings I was having.

The pill wasn't working so I was put on prostap which really was working but I was told I could only have for 6 months. They informed me of the 6 month limit after a year and a half. I was returned to the pill.

Still in pain and feeling like I was running out of options I was given a mirena coil, but this was after having a burst appendix and during the surgery the surgeon took photos of my overies. I receive a call back due to his concern that I had fibroids, the gynocologist said I didn't. So the coil was put in.

Now it seems to be doing it's job however the pain during sex is worse than ever, I got married 2 weeks ago and myself Andy husband had sex. During which I was in so much pain it made me cry (not the best scenario for romance). I am still in pain in my right lower abdomen, it feels like something is bruised?

Any advice please!!!

5 Replies
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Also I should say I also have pelvic vein inconpetence and a tilted womb.

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When did you last have a laparoscopy and was it performed by an endometriosis specialist?

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Must have been 7-8 years ago and the consultant was a general gynocologist who specialises in endometreosis, but in all honesty when she saw it was mild she didn't seem very bothered.

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That's a long time ago.

Ask your GP to refer you to your nearest endometriosis centre for an expert opinion. Member Lindle on here has a lot of info on her profile page about how to go about doing this to ensure you get proper treatment. The laparoscopy needs to be performed by an endometriosis specialist/surgeon and the endometriosis needs excision (not laser). An endometriosis specialist will look in the areas some gynaes miss, so more chance of getting rid of as much as possible.

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Thank you that sounds like a great plan. I just find it so frustrating that doctors don't provide this sort of information!

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