I'm aged 21 and I've been suffering now for 6 years, I massively respect those who have been suffering for longer!
This is my story
At aged 16 I noticed my first symptom it was pelvic and abdominal pain,
The doctor straight away put it down to stomach acid, so I was on operzole tablets, which did nothing.
I then went back as I was in agony with my abdominal and pelvic pain! Even my lower back started to hurt!
They said to me perhaps with you being a teenager it's just pain with periods and your periods are normally heavy at that age.
They booked me in for a ultra sound scan.
I left going the doctors for a while as I felt it must be my periods.
Still having my pelvic, abdominal and back pain, I then started to notice bleeding during sex, and pain.
I then visited my doctor as I knew this wasn't right, they sent me off to the clinic to be tested for STI'S the swabs all came back as normal.
I then visited again as I noticed I had a water infection, this was probably my 5th water infection! I've suffered with them since the age of 14.
When I visited this time I was referred to see a gynaecologist she had to do more swabs, and a smear, she found that I had an erosion, so I then had to be booked in for Cryosurgery, The cryosurgery wasn't a pleasant experience, especially been the age of 17
A couple of weeks later I then visited a different gynaecologist again after my cryosurgery, she told me that they shouldn't of really done that procedure on a young cervix, and she told me my erosion was still there, she advised me to wear loose clothing, and use non fragranced shower gels. I was never seen again after that!
A few months later I was still having pains in my abdomen, back and pelvic area, but they were getting unbearable it felt as if someone was squeezing my insides really tight! Work got tough as no one believed how I felt, and thought I was putting it on!
I then returned to the doctors with another water infection, turns out it was a kidney infection, they then asked more about my symptoms so they booked my In for a transvaginal scan, and ultrasound scan, I went for the scan, got my results and found out my kidneys are conjoined together, They were shocked it was never picked up in my previous scan as your born with a horseshoe kidney! I then thought I had my answer! I thought that's why I've been feeling this way but how wrong was I!
After been referred to a urologist he was very happy with my kidneys how they were functioning. You can have a healthy life with a horseshoe kidney, your just more prone to getting infections.
After seeing my urologist I was still having the pelvic, abdominal and back pain, I also noticed stiffness in my shoulder.the pain got so bad I struggled to sleep, I had to sleep with a pillow underneath my side, I then noticed I was sick quite often for no reason, I didn't have a bug or anything! It was just very random!
Still months on I didn't know what to do, I didn't think the doctors could do anymore for me, I felt uncomfortable going back and I felt like they were saying "oh what's up with her this time" I felt like they were fed up of seeing me! I then realised I was suffering with anxiety.
After months I then returned back to the doctors to say how fed up I was of feeling like crap, I was always tired I had no energy, my pelvic pain was still as bad, me and my boyfriend were constantly arguing about sex, as our sex life has gone down hill, it's far to painful! And it's horrible because my boyfriend doesn't understand how I feel! It's making me feel so low about myself!
I told the doctor all this, they adviced to use different lubricants, different positions! We had already tried that! So they sent my home with nothing!
A few months later I found out I had depression, I didn't want to get out of bed in a morning, I'd just cry and don't know why, even getting in the shower was effort! I felt drained and I don't know why! I'm am now a 20 year old and I feel like a pensioner!
I found my depression got better I listened to happy music, and joined the gym! I still had low days but it was nowhere near as bad as before.
I still had all my symptoms from before my
- pelvic pain
-back and shoulder pain
-pain during sex/ relationship struggles
But I'd had them that long now I almost felt immune to them!
Within the last couple of months I then started to notice my bowel wasn't normal, every time I went to the toilet it was either diarrhoea or I was constipated, I expireced pain during bowel movements, sometimes it would be embarrassing as i would be fine all day then I'd need to run urgently to the bathroom!
So another trip to the doctors with my bowels, they did a stall sample but nothing showed and they didn't treat me for anything else, they were still concerned with my other symptoms, so they made another appointment to have some more swabs because she was concerned about my pain during sex!
I then went in the week after and just broke down I told her how fed up I am! It's been going on for too long! So she was asking for all my symptoms, I told her, she then referred me to a gynaecologist, my doctor said it could be endometriosis or vaginosis!
I was so excited to see a gynaecologist!
I saw my gynaecologist and she was great, she went over everything with me! And after doing all the examinations! She ruled out vaginosis! And said we're left with endometriosis, she said that's what it sounds like to her,
So I'm now on the waiting list for my laparoscopy.
Can anyone relate to anything I've been through who's got endometriosis ?
Can anyone recommend anything to help with IBS ?
And Can anyone help with advice on a good sex life with endometriosis as it as effecting me and my boyfriend ?