Just looking for a bit of advice.. I've been on the waiting list for a total pelvic clearance since September and managed to get an appointment with my consultant today as I needed something to help with the pain.
I wasn't sure about the hysterectomy as I'm only 33 and a diabetic. I started on Prostap in September and had my last one in December. I had been taking Tibolone and it made my blood sugar levels so erratic and I felt worried and on edge all the time. I stopped the Tibolone in December and felt much better.
I saw a private gynae in London and he believes that the pain is due to endo in my nerves. He recommended going to see another endo specialist in London that deals with nerves. This would cost £495 and then I could ask for my care in Wales to be transferred to London which I could then have a specialist MRI scan and nerve blocks. Getting to London several times a year is a bit awkward and paying for the initial.consultation is a problem too. The private consultant did say that if I went ahead with the hysterectomy I should ask to keep one ovary to prevent going into the menopause.
At todays appointment I questioned the fact that a hysterectomy is only meant to help if you have Adenomyosis. She said that wasn't true and if the womb is removed the lining can no longer spread and cause endo. She spoke to the consultants and they said they want to remove both ovaries as it will stop the risk of recurrence and then if they have to remove the ovary that's been left it will be too complicated and I will have too many adhesions. They said I can try different HRT if the Tibolone didn't agree with me. For pain relief they said to go on the Prostap again until my op in June time and stay off the HRT.
I just don't know what to do. I don't want any more children but being on HRT was awful and I don't want this done without a good sureity it will work.
Sorry for the essay!