I’m after a bit of general advice. I’m about 12 weeks post total hysterectomy and I’m 42.
They started me on Tibolone and it was great at first. My memory is terrible, I’m having these horrid episodes where I can’t think straight/concentrate. My moods are so up & down & I’m exhausted. I’m warm but not having hot flushes. I’m anxious about different HRT due to the threat of endo coming back as I think I’ve still got some on my bowel (haven’t seen consultant post op yet).
I’ve put myself on evening primrose oil at a really high dose but I’m a bit lost what else to do. I’m seeing my consultant 18th December and wondered what other HRTs are safe out there.
I feel so lost with this. I’m a nurse so my husband keeps asking what’s normal but I don’t know! Sorry tearful day
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ccsmith
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It sounds very early in your recovery. How long have you been taking the Tibolone?
The tiredness is 100% to be expected and that hangs around for quite some time unfortunately.
Not to be a downer but this recovery is a long drawn out process. Im 21 months post total hysterectomy bso cervix removed and at 4 Months I was putting alot of pressure on myself, I foolishly lifted a paintbrush and was painting my outside fence even though I knew the abdominal muscles were straining. I was feeling semi positive but the sun was out glorifying things...
I know I set myself back.
I have posts on here that span away back to a few months post Hysterectomy. I know there was a time I felt well prematurely but it was short lived and I pushed myself way too hard.
Im on my 3rd hrt now which is Tibolone and its the best fit for me so far. The patches wouldn't adhere to me and in January 2019 I only read 100 on estrogen blood level, the nurse said it was too low for a 39yr old woman. I was exhausted and had been having my thyroid looked at. I was in the low reading but not in NHS's direct hypothyroidism range. I tried the gel, I was marginally better on it yet days I was forgetting to use it or I was late using it.
I practically demanded the tibolone. I take it on Fluoxetine and its supposed to be good for sweats. Im not sweatting lots but Im umsure if it was because Ive had a 2ndary estrogen supply in the form of an ovarian remnant clinging on to my abdominal wall.
Its only been 3 weeks tomorrow since its removal.
Maybe Il plunge into further Menopause without this entity insided me with god knows how much estrogen.
The HRT's come in lots of varieties though and I often hear the term bio identical HRT, I may have to look into this if the Tibolone proves to be too little coverage secondary to maybe supplementing the Tibolone.
Give yourself time and please don't overdo things.
Thank you. I must admit because I forget I’ve had it done I do struggle. I’ve been back at work 3 weeks and finding it tough. Then sat I had my daughters best friend over to go to a Xmas fair which left me exhausted & in pain. Then Sunday we decided to rearrange my daughters bedroom which finished me off. I feel guilty for struggling as ‘life has gone back to normal’ and my husband works ridiculous hours.
Thank you for your kind words. I must slow down xx
Yes I’m at a proper centre, it was very complicated my surgery and he wanted to do the do my hysterectomy etc and left nodules on my bowel. He’s hoping I will be fairly symptom free and he doesnt need to remove them. I’m seeing him 18th to discuss it all. My endo symptoms are much better, I still have bowel frequency but only have discomfort on opening my bowels now so maybe I can cope with it 🤞🏻
Thats exactly how i felt and it wd take me 2 days to recover from an outing.
Swelly belly ongoing too the pm look was bloated more bloated and sore and heavy and bloated.
I have been left with complications and have just had a further surgery so Im looking at way over 2 years now for a good recovery gauge, I will be 6 months post 2nd Op May.
Hopefully start feeling & seeing changes for the Summer.
The waiting is killing me and the coming to terms with not being who I was before it all blew up into unmanageable proportions.
Always like to check up on this site for the familliar posters and new members seeking help.
Remember you can say no. " Since Hysterectomy I cant do 4 hours walking around Christmas market" I set your boudaries.
This is a new us (temporarily hopefully) and a new getting use to. Its hard but its the only way without causing further damage
Hello, No advice from me I'm afraid but will be interested to hear how you get on because I am just under 4 weeks post op - I also had a total hysterectomy (age 39) & I'm seeing my doctor tomorrow to speak about HRT. I'm pretty nervous about it because I'm really struggling with my menopause symptoms & I was quite naive in thinking that I would go to GP, get HRT & live happily ever after!! Hopefully though I'll get some relief from whatever they put me on because my hot sweats are crazy!!
I have also been putting too much pressure on myself to get back to 'normal' & get frustrated that I'm still in pain & struggling. From reading the comments on here it's given me some comfort.
I hope that you continue to heal well & good luck with your next appointment. Fingers crossed that they'll find the right treatment for you.
I had a total hysterectomy, bso on 12 Oct - so about 6 weeks post op. I share the ups and downs of recovery but often reflect on my symptoms pre surgery and thank my brilliant specialist and surgeon for saving what felt like the end of life .
I was naive in the fact that hrt would make everything better too- unfortunately not and from my reads and conversations it’s trial and error that can go on for some time. I started on evorel 25 patch (v low dose I thought for surgical menopause) but the GP insisted . The patch is great and has reduced slightly some symptoms but I definitely need a higher dose - I have an appointment Thursday with a different GP . The additional issue there is that the patches the GP prescribed - the higher dose of them is not in stock , 👍 as there is a shortage until spring next year in the uk . Maybe my GP could have thought about that before prescribing the evorel 25 - I feel like I wasted a month . I will probably ask the GP on Thursday for the gel and a higher dose and leave this near my kettle to apply every morning whilst having a coffee 😁- at least until next summer when the patches are getting stocked . Good luck with your appointment and will be interested in knowing what your GP advises x
Hello, so sorry for the late reply. So my GP put me on a continuous combined HRT in tablet form called Fliofem (Estradiol/Norethisterone acetate). I've been on it for a month now and has definitely helped my menopause symptoms. I'm now 8 weeks post op and still struggling with very painful spasms though so not having a great time. Has anyone else suffered with post hysterectomy spasms? On my good days I feel great but there's not too many of those. I've been abit up and down with my emotions but I think that's more to do with my pain levels.
Hi I’m 9 wks post op TLH +BSO, excision of stage 4 endometriosis and a bowel resection. I’ve been put on Tibolone by the specialist, he said for a year as this one is best at preventing the Endometriosis coming back. Gp had put me on Estrodiol which I had for 2 weeks and was just getting the flushes under control, so far 5 days on Tibolone no issues yet! 🤞🏻
Wow thanks all it’s great to hear I’m not on my own and what I’m experiencing is not abnormal.
Sounds like finding the right HRT is a struggle.
I think we’re all struggling with trying to get our life’s back on track. I’m like everyone I want to be able to work, run the home, have a great relationship and carry on without the endometriosis affecting me.
Best wishes all and thank you for sharing your stories and support xx
Hi I am on tibolone I have been having an awful few days! I have been on it before and I am sure I felt better after being on Amitriptyline so am hoping to go back on that as I feel like am going crazy and can’t cope
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