First time on prostap...

[shazlovesevo]

Hey lovelies,

*Firstly would like to say I am under BSGE specialist! *

I have been to see my consultant today. I had the Mirena coil fitted in may during excision surgery for moderate endometriosis. 3 weeks later I was rushed into hospital in severe pain & bleeding, after many tests i was told by gynae that my endometriosis was causing the pain. Managed to get fast appointment with endo specialist and she confirmed that it was my endo causing the pain, she said some people's symptoms go with surgery and some people's symptoms don't go at all. I'm one of the unlucky ones!😐 she told me to stick with the Mirena and she would see me back and see how I am.

I've gone back today, shown her my pain diary which she has kept, explained that nothing has changed with the mirena and if anything I feel worse. She did an internal examination and pushing on my lower tummy with fingers still inside (very frickin painful!), speculum and swabs (which also very painful!), checked coil was in place, urine sample (all clear) and I've also had a blood test. She wants me to have an MRI scan as she's concerned as to why I'm in so much pain. She has also decided to put me on 3 month Prostap injections, had my first one today. I have to wait for my Mri then go back to see her in 4 months time to see if I feel any better. (Keeping mirena in for now)

I was just wondering, what happens if the injections do help? She said I can't have them for more than 6 months as I am at severe risk of osteoporosis and 21 years old. So what happens after the injections? Is it back to a painful life? I suppose I've just got to wait and see how things go and see what my mri results bring. She also spoke about my mri and said if something shows up then they will have a good idea of what's going on but if nothing shows up... then she stopped, I said yeah what happens then? She stuttered and said we will discuss that when we get the results?

I've got so much stuff going through my head right now 😣

Would anyone be willing to share their experiences on prostap?

Sorry about the long post, just lay in bed with so much stuff going through my head.

Been an emotional day,

Hope you're all doing well❤

[Starry]

Huge hugs xxx it sounds like you have really been through the wringer. This article mentions a few potential causes of post lap excision pain and why the first cycle is so bad after a lap.

centerforendo.com/is-my-end...

Afraid I've no experience of prostrap as still attempting the mirena coil.

[shazlovesevo in reply to Starry]

Thank you for that hun, it was really helpful!xxx

[penny24]

HI there

I had the prostap injection in oct 16 following laparoscopy.

It lasts 12 weeks and for the first week i was fine no side effects.After the first week I started with hot flushes (gradually started) i was woken up 4-5 times a night with them, slept with the window opened and that helped/ I had a headache in the afternoon everyday for the first month- drink lots of water and this will help. my skin was dry and i lost head hair (not enough that anyone else would notice) and there was plenty of new hair growth. by about week 10 my skin was less dry, and the hair loss stopped and the hot flushes were reducing

I had no endo pain and no periods while on it. Would I do it again? yes to stop the endo pain I would. The hot flushes were the worst symptoms but you are doing it in the winter months so that will help. Drink lots of water and loss fitting clothes will help

Good luck .x.

[shazlovesevo in reply to penny24]

Hey hun,

Thank you so much for your reply, helped me lots!

Thank you! Hope you are well? xx

[penny24 in reply to shazlovesevo]

No problem, I hope it helps.

I'm doing ok. I've gone straight into an ivf round because the endo has damaged my tubes so finger crossed it was all worth it.

How ru feeling on the prostap? I found it helped counting down the weeks. Also found that people didn't really understand what I was going through, so I'm here if u need anything xx

[shazlovesevo in reply to penny24]

I'm glad you're doing okay☺ so sorry to hear that the endo had damaged your tubes, I really really hope the IVF goes well for you! & I'm just trying to stay positive, mainly feeling tired at the mo, & back ache, having some hot flashes, & thank you hun xxx