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Endometriosis UK
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Mirena fitted to protect from endo...weight GAIN!

Hi. I had two laparoscopy back February this year and I've been treated for severe endometriosis/ cysts removed. I was also on prostap that time ( 6 months all together) When I saw my doctor for final discharge 3 months after surgery he said I should have mirena coil to prevent endo back.

It is 5 months now with mirena and I must say it helps with periods and pain a lot. I barely bleed. But... I'm rapidly gaining weight. I am this person who was always skinny and I could enjoy eating whatever I wanted and how much I wanted. Never on diet! People was always telling me I'm too skinny so even if I tried to put little weight on to make me look bit better I couldn't.... until I got mirena fitted! It is only 5 months and I can see additional 13/14 pounds more on the scale!!! I'm devastated as I had to buy some vlose size up and I'm still gaining! I'm thinking to having this thingy removed as I can't afford to be any bigger and I feel uncomfortable with additional kilos already. Apart af that I'm also very tired and I lost interest in everything... literally everything. Could sleep all the time., and still tired:( Anybody with similar experience, please help me. I need to make right decisions as I don't want also endo back and painful periods:(. Sad as I had so much hope in this device:///

Aggie 🎀

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Mirena is hit and miss. Some get on with it and some don't. I had a terrible time with my first one non-stop bleeding. Just had my second, as my consultant was desperate for me to give it another try. If you can hold out for another 6-months perhaps your weight will stabilise, everyone told me it will get better when i had my first one in. In the end i waited 11 months before demanding it was taken out. This time i am determined to give it another fair shot, 11-12 months. If your weight stabilises perhaps it will be the solution you are looking for. Can you look at your diet and exercise and maybe make a few small changes that might prevent further weight gain? And a stone heavier, but to be pain and period free could be a worthwhile compromise? Although if the weight gain doesn't slow/stop within another 3-6 months after looking at diet and exercise, i'd say get it out - or at least that's what i would do. I don't feel like i've been much help sorry!

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Thank you tmc 182. I think it will be silly to let go now and having it out straight away because of few kilos more... it helps a lot for my endo . I will try what you suggest and maybe try to eat healthier and less...maybe some exercise too but I must admit that I'm tired even from thinking about it lol :D

I will give it a try for another few months and if nothing change I will take it out. Fingers crossed it will improve! Thanks xx

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Lol i know what you mean about healthy eating and exercise - i need to practice what i preach! Before my lap on 9th Nov i was eating healthily, juicing, and riding my bike 80+ miles a week. Now nothing - i am struggling to eat anything and the thought of veg turns my stomach! I did a tentative 3 miles on my bike yesterday, which resulted in pain and cramps. I am trying to tell myself to stick with and it'll be a cure all but motivation is lacking! Good luck, hope it works for the both of us :)

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Haha! Wow your bike score was so good ! If you've done it before u can do it again ! know ... it's not easy to back on track with exercises after break and it's cold now...and dark wrrrrr :/ before my last lap I was taking yoga classes but now even mornings stretch hurts haha! Well ... we'll get there eventually;) take care x

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Hi

I have gained 1/2 a stone (sorry only do metric!!!) I feel hungry all the time and I am overweight any way. The coil hasn't helped me with pain or bleeding but i am hoping to give it longer. I am trying not to eat regular meals and be aware of the constant hunger. I hope to avoid radical surgery or a medical menopause. good luck and hope things get better xx

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How long you've got your coil? I remember I struggled with some pain for first few weeks but now it is amazing! Love it apart of gaining weight. 0.5 is not bad ... I scored over stone now! Let's keep waiting and give it little more time ...we will se what happens;)

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Hi

I have had it for 6 months I have heard some people saying it took over a year to get sorted. My pain is not better, I have a gynae check up in a few weeks time.

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Little update ... I stopped gaining the weight so I will pleased with the coil if it stays like that. Fingers crossed all bad symptoms will settle down soon :)))

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I had the Mirena coil fitted in August 2018 for both heavy periods and birth control. I was so desperate for this to work and was excited to have it fitted. I explicitly stated that I wanted something that DID NOT cause weight GAIN as I have worked hard to reach my perfect BMI over the last 2 years. I was informed that it would NOT cause weight gain. The insertion was really painful (and I mean really painful) but I was glad that I had it fitted. Immediately I had major contraction pains which took my breath away. These went on for nearly two months. I also had an insatiable hunger. This lasted for 3 months and then happened every 2 weeks thereafter. I also bled seriously heavily for the first 3 weeks and then had light bleeding every. Back and hip pain was also a permanent fixture from day 1 of insertion. I also had mood swings which made me feel very anxious and angry and my hair started falling out. I've never had an of this in my entire life! I went for a check up to make sure that everything was ok and that the coil was still in the correct position and was informed that it was. After three months, the bleeding calmed down to every 3 weeks, but my stomach was ALWAYS bloated and really uncomfortable every day with mild and sometimes severe cramps. My stomach looked like I was expecting twins, really embarrassing especially as it used to be flat. I spent Christmas feeling REALLY uncomfortable. I then weighed my self. Despite not putting on weight in 3 years and in fact losing it over that time, I'd gained 12 pounds within 4 months of having the coil fitted, seriously not good. I was doing exactly the same amount of activity and eating the same things as I had done over the past 3 years. It is now January 2019. I've had the coil in for 5 months, but I've just got back from an appointment to have it removed. It's the best thing I ever did. My stomach pain has already disappeared, I really didn't think that the results would be so quick, but they really are. If I'd of left the coil in for another 5 months, I guarantee that I'd have put on another 12 pounds, or more! Please, please think very carefully about having one of these things fitted. My experience was horrific.

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