I've been reading through all of your posts for what seems like years now. I hear myself in each and every one of you! Since the birth of my last child 19 months ago I have been dealing with extreme fatigue, lower abdominal/pelvic pain that's worse on the ride side, bloating, frequent urination, heavy periods with large clots and pain during sex to the point that I am afraid to now have sex at all. I keep getting the run around between my obgyn and pcp. So far I've had 2 ultra sounds, numerous paps and a ct and everything has come back normal. My doctors look at me like I have 10 heads. I am not imaging all of these symptoms!!!! And to boot, they seem worse month to month. I've requested a laprascopy last month and my Dr sent me for the 2nd ultrasound. Tomorrow I meet with him again to get the results, however my pcp already stated it was normal.
After months of research I realize that the s/s of endometriosis and adenoyosis are very similar. I'm wondering if I should request an MRI first to see if it's adenoyosis or should I just request the lap procedure and have the MRI after. At this point I have lost all faith in my drs. I feel like they will tell me it's nothing even if they find something just to prove that they're right and I'm crazy.
What are your thoughts? Do the lap first or the MRI first?
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bmagill1226
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I would personally ask for the MRI before, as if you have the possibility of it being two things, they could have a look at both during the procedure...
I like your comment about hearing others on here. I too would try an MRI first if you are already struggling with pain and fatigue a procedure may well flare that. Please keep in mind that endometriosis can be microscopic and seems it can be missed by general surgeons even in ladies with bad cases. I have diagnosed endo and my gynae did not need an MRI to diagnose me with probable andeyno. She has said an MRI may be of little use as it can be the smallest patches causing pain. Your MRI may well come back normal.
Have you considered or been offered hormonal options? Are they treating your pain so you can live? Why is it you that has to request a laproscopy. If your doctors are not listening now if might be a good time to re assess before looking back on procedures that have caused truama to the body and take time out of your life. It sounds like you should have been offered medical support based on symptoms. It's sad that people almost have to become self advocates and approach the medical means available with a strategy in place. I would look at moving on in your medical professionals if your not feeling heard at this point. It is 2016 and that is sad to hear about still having to fight to have endo diagnoised.
I like your comment about hearing others on here. I too would try an MRI first if you are already struggling with pain and fatigue a procedure may well flare that. Please keep in mind that endometriosis can be microscopic and seems it can be missed by general surgeons even in ladies with bad cases. I have diagnosed endo and my gynae did not need an MRI to diagnose me with probable andeyno. She has said an MRI may be of little use as it can be the smallest patches causing pain.
Have you considered or been offered hormonal options? Are they treating your pain so you can live? If your doctors are not listening now if might be a good time to re assess before looking back on procedures that have caused truama to the body and take time out of your life. It sounds like you should have been offered medical support based on symptoms. It's sad that people almost have to become self advocates and approach the medical means available with a strategy in place. Good luck
I'm sorry to hear your pain is getting worse month to month. I honestly feel your pain and its soul destroying to be fobbed off over and over again. It starts to make you doubt if your just making it all up.
But I would ask for an MRI, as I was told this is the only scan that can see endo. I had a diagnostic lap first but they found it so severe that, it I had to have an MRI to find out the extent. The ladies are right though it depends how bad the endo is, it may not show up on the scan.
From reading posts on here, I was led to believe endo can not be seen on MRI - am I wrong? Only a lap can show up the endo? Or is this more from a diagnosis point of view? I have my BSGE appt this week for my possible endo.
From what I've read adenoyosis can be detected by mri, and depending on the severity so can endo.
My thinking is that if they are going to go in surgically I want them to have an idea of what/where to look and if I do have it I'd like to be treated right there and then instead of getting another run around.
Thank you all for you comments. You made me feel so much better about this appt today. I haven't been referred to a specialist, however I have been referred to a bladder specialist, kidney specialist, hematologist...everyone wants to pass me along, when I'm telling them what I think it is if they would just listen to me. I've been to 3 different obgyns and have also changed primary doctors twice because of this. I thought about giving up and just excepting that this is my new normal, but why?????
I will keep you all updated! Thank you again, you are all so wonderful!!!!
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Answers after Lap?
Did you experience bowel problems this long after lap? 
Struggling after lap
Nervous Lap won't find anything.
