Hi All at Endometriosis UK 😊
My name is Sarah, I'm 29 and I live in Wales. I was diagnosed with endometriosis at 18 following many painful and confusing teenage years. I have had 3 laparoscopic surgerys, the last one in November. I currently do not take any hormone based therapies as I am hoping to start IVF early next year... However in the last 6 months my endometriosis has definitely got worse. I regularly now get hot flushes extremely painful and heavy periods (more so than before), awful and sometimes uncontrollable PMS and a very painful lower back and left hip and what I think is sciatic pain in my left leg especially when sitting and walking. My doctors have been giving me a lot of pain killers - the latest 3 weeks solid I have been using phorpain ibuprofen gel, freeze spray, was taking co-codamol, diazepam and lanzaprozole (to help with stomach pain from the naproxen). I have been going to work but feeling in pain (and a bit high) most of the time and despite all of the above have still needed a hot water bottle. It's been really stressful being in so much pain for so long... I went back to docs yesterday and they have now replaced all the separate painkillers with oramorph and senna (for my sore bottom 😶)...
I am today finally submitting and have taken a day off to rest and have stumbled across this forum 😀
I guess what I would like to know is;
1. If anyone else has had this type of back/hip/sciatic pain? It's driving me crazy! I have asked my dr if it could be endo on my bowel/causing pressure or obstruction to my nerves. She says this is very uncommon. So I am frustrated to not know what is causing this intense pain.
2. Does anyone one else get hot flushes? Is this normal or could this mean I could be close to early menopause?
3. Has anyone tried acupuncture for pain relief and would they recommend?
Any help and advice or just reassurance would be really appreciated x x x x