Hi Ladies, so I haven't posted in a very long time so this will be a very long post! I previously suspected I had endo and had a lap at the beginning of the year and told I had PID (pelvic inflammatory disease) which I was treated for at the time with a course of antibiotics. The following is what was on my discharge form from the hospital:
Primary/ Main diagnosis
Chronic Pelvic Inflammatory Disease
Laproscopy findings- uterus retroverted, right ovary and right tube densely adherent to the pelvic side wall and POD
Bowel adherent to the pelvic wall
Left Tube and ovary normal
Dye test positive on both the sides with spill from both tubes
I wasn't entirley convinced this diagonis was correct along with my GP who also thought my gynae. was fobbing me off. My consultant basically said there was nothing more she could do for me and discharged me from her care. This made me feel like everything was in my head and I felt a bit stupid so I stopped pursuing it.
I was able to pain manage my symptoms with a number of medications prescribed by my doctor; mefenamic acid, tranexamic acid, co-coaldamol, mebeverine and amtriptyline to which I take a total of 16 tablets a day when I'm on my period! Which makes me feel like a zombie for the duration!!
My symptoms seemed to calm down for a couple of months and the medication does work but recently they have been flaring up again. Can endo. come and go? My symptoms are as followed; extremely painful heavy periods, bowel habits change and painful when on period, I experience painful sex when it's deep penetrative and certain positions, fatigue and lack of energy, occassionally lower back and hip pain before and during my period.
I also use to suffer from irregular periods but have now regulated to 4-5 weeks since last December. I still haven't been able to conceive after being off contraception for 3 and a half years. My husband has had a semen analysis and everything came back normal. Would if be worth going private to see a specialist to pursue my symptoms and findings from the lap? My consultant did say nothing could be done about my adhesions but surely I can't be left in this state?
Also I had an ultrasound nearly 2 years ago which showed cysts on my left ovary but they couldn't diagnosis me with PCOS as my bloods were fine although I had high prolactin every now and then and bloods were showing I didn't ovulate.
I'm guessing I just want some advice to where do I go from here? I've put it on hold for a while because I became a little obsessed with it and it caused me a lot of stress but it's always in the back of my mind.
I would appreciate any advice ladies xx