Please help with fertility question - Endometriosis UK

Endometriosis UK

57,045 members45,594 posts

Please help with fertility question

Mazzy93 profile image

I had a emergency lap in September for what they believed was a torted ovarian cyst- however the cyst was not torted but I did have dense pelvic adhesions everything was stuck together my bowel was stuck to my pelvic wall and bladder to uterus, they found my Fallopian tube to have hydrosalpinx and be swollen and damaged. On my right side they could not see my ovary or tube as my bowel was stuck on top of it, but gynae have said that they think I’ll have hydrosalpinx that side too.

They think it’s from chronic PID but I’m now under a new consultant and they’ve said possibly endo but I’m having to wait a year for another diagnostic lap!!!!!

I am constantly getting flare ups of pain and ovarian cysts, I had a scan this week that now showed adenomyosis, I’m unsure how this has never been picked up before!!

Me and my husband have never tried to conceive naturally but in light of all this we have booked to see a private fertility consultant, are we doing the right things? I’m So confused by it all and devastated all we want is a family!

10 Replies

You need a lap first I would guess but no harm in ttc whilst waiting usually I would talk to your endo specialist about ttc not a typical fertility specialist as they don’t know about the condition

Mazzy93 profile image
Mazzy93 in reply to Afrohair

We’ve already booked to see a feirlity specialise because my hospital have said we will most likely need IVF I have had a lap as an emergency and confirmed hydrosalpinx and dmaanged tubes, also dense pelvic adhesions, which they said will result in an ectopic, so I’m not happy to try naturally until we get a fertility specalist opinion

Afrohair profile image
Afrohair in reply to Mazzy93

Ok sorry I must have misread it’s true ivf maybe better

Mazzy93 profile image
Mazzy93 in reply to Afrohair

Just so many emotions going in my head right now, just didn’t ever imagine we would be in this situation. So upset by it all :(

Afrohair profile image
Afrohair in reply to Mazzy93

I’m so sorry you are going through this mazzy you will get your family please try to bring peace and calm to yourself at this worrying time x

What about the lapdye test? Are your tubes blocked or not? High vaginal swab done?

Mazzy93 profile image
Mazzy93 in reply to Felma

My left one is very swollen and blocked with fluid my right one they aren’t so sure, yes I’ve had so many high vaginal swabs all come back negative!!

In your case you need complete excision surgery ASAP.

It's preferably to avoid a diagnostic laparoscopy because it won't unstuck all the organs. You've already received a laparoscopy and the ovarian cyst leaves no doubt: PID doesn't cause cysts so it's either endometriosis or both endometriosis and PID. You don't need a diagnostic laparoscopy. You need full excision + adhesiolysis and what not.

Please email me and I'd be more than happy to help you further: s.dellarovere@live.it

I’m sorry to hear that you are facing all of this- I am in the same position as you and I just wanted to send a hug.

I’m in the same situation also.

You may also like...