I'm in Canada, but this so far has been one of the best forums I've seen. Everyone talks about the pain but I don't see many descriptions. I've had this sharp pain for years and years that nobody else I know seems to have ever experienced - even the ones with IBS. I've done the internal and external ultrasounds, xrays, bloodtests and nothing. But up until recently, I thought all my pain was just normal, something that as a woman I just had to deal with but the more I read the more I'm finding it's not so normal... I'm hoping others will be willing to descriptively share what their pain is like...
Bloating so much, so much stomach discomfort it causes pain to wear tight fitting pants
Bloating (lately, all the time) around period, not helped by probiotics.
Pain, sharp and camping and aching in pelvis, back.
Awful debilitating cramps when I first started my period around 12, that's around when sharp pain started too. Mom said it was normal cause she had bad periods too when she was younger.
Cramping a lot even after periods, not quite the same as a period cramp but still there and still painful.
Diarrhoea on period, like, always.
The sharp shooting pain that I get majority of the time to do with bowel movements but not always, can be so bad it stops me in my tracks, afraid to breath incase it makes it worse. Want to literally scream in pain but can't because I'm breathless. I've had to stop in the middle of a store completely embarrassed with my social anxiety holding on to my friends arm and have a store associate ask me if I'm okay and if I need a chair because I'm just standing still obviously in pain. Fallen off the toilet with this sharp pain that shoots all around my pelvis area, couple to few times had it go down into my legs and up into my torso. It's been so bad a few times I thought something extreme was happening in me like my uterus or bowels were going to fall out of me and considered the hospital.
I've tried completely relaxing my muscles everywhere, knowing I get tense with pain, and I've tried being more tense and neither seems to help I just have to wait it out
Going too deep during sex is extremely uncomfortable and can be painful. Having tampons in was always a dream but always too uncomfortable, no matter how I put it in or how many times I tried, or how many sizes or how long I'd go trying just hoping it would get comfortable the longer I had it in, it never got better so I just stopped trying with the tampons.
The general every day pain seems to be getting worse and worse over the past year, still another 4 month wait for gynaecologist to even discuss the possibility of a laproscopy to confirm or deny endo.
Appreciate any descriptions!