so after 6 hospital admissions in 3/4months I'm getting a laparoscopy tomorrow and to say I'm terrified is an understatement. Mostly I'm terrified of what they don't find. every test and scan iv had taken has come back clear but in bad pain and crazy bleeding, constantly tired and crazy emotional mood swings. Docs and consultants think i have endometriosis and ibs. Patterns are emerging more frequently now but feel like I'm imaging all of this due to nothing showing up. Does this make sense to anyone else?? Was at a wedding all day yesterday and by the time I got home i was doubled over in pain again with random bleeding, so back to bed with a hot water bottle and more pain killers. Does anyone notice that if you sit on hard chairs you get Worse?? Also Due to fly out to Salou in 12 days and have been given two sets of advice from doctors and consultants about going. can anyone advise on recovery times and if we should cancel or not?? only gong to Salou so short flight i should mention. Sorry to sound like a crazy person but any advice would be very appreciated.
thanks in advance xx
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xAliGx
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Hi, I'm currently waiting on a laparoscopy and feel exactly the same as you. I'm so frightened that they won't find anything, whilst in one way that'd be a good thing but for someone who experiences such pain and awful periods it'd be ideal to finally have a diagnosis, accept the diagnosis and start some form of treatment. I hope your surgery goes well and that you feel well enough to go on your holiday. I think the recovery time varies a lot depending on what or if they find anything during lap. My friend has endo and had the lap where they burnt away endo and cut adhesions and she described her pain after on par with when she had a c-section. So I think it really does vary on an individual basis.
thank you so much for the reply, as much as you would never wish to have a condition at least if they found something it gives you peace of mind knowing that your not going insane. To be honest its only a holiday and we can go another time when I'm hopefully feeling a bit better. have they told you how long you have to wait for your laparoscopy?? have they tried you on any meds yet?? Ive bn put back on the mini pill to reduce bleeding and works sometimes but still get clots coming, also have tried on mebeverine and buscopan but since taking them the pain has been worse. I hate taking pills aswell so hoping tomorrow gives us some answers. good luck on your journey and hoping they sort something for you quickly.
Most definitely, it's an awful thing when you start to question yourself and think you could be imagining it all. We aren't though we'd have to have one hell of an imagination if all this pain and suffering was just in our heads. It's just a case of having that one health professional who listens and believes you, then their willingness to help you get a diagnosis. I have my lap in 3 weeks, I saw my new consultant at a new hospital last week who thankfully did more in half an hour than my local hospital did in 8 years. It's been a long road and a lot of mistaken diagnosis to get here (one being Crohn's disease) but I'm focusing on hopefully feeling normal, if there is such a thing lol! You'll have to let me know how you get on 😊 Like you say about the holiday you can always go another time, your health is vital and I'm sure you'd enjoy a holiday when you are feeling well in yourself again. Ps I've not been given any meds yet only pain relief x
forgetting what normal feels like haha, thankfully my doctors have admitted the are not knowledgable enough in endo and refer me to gynae every time i go. scary thing is i have a high pain tolerance so they know when i go to them its bad, hence why i keep ending up in hospital all they keep saying to me is trial and error at the mo but fingers crossed for tomorrow. Ill let you know how i get on not due in until 11am so I'm assuming its an afternoon app i have but hopefully i get out in the evening. thanks again for chatting, helps knowing other people understand my frustration. xx
You're welcome, I found this site and it's a little gem, it does help talking to people who understand. I wish you the best of luck for tomorrow and hope that you get the answers you are looking for xx
Hi there I started with constant pain about 2 years had many trips to the doctors but kept getting fobed off, eventually they sent me for a scan but nothing showed up, so then was refered for a laparoscopy where they found I had endometriosis which they lasererd off, it did put my mind at rest as for so long I was in constant pain but didn't no the cause, try not to worry as at least your mind will be put at rest, hope all goes well x
Thanks Katie, definitely hoping we get some answers tomorrow. Will Have no nails left if I continue like this so going to bed and hope that I'm home and in my own bed tomorrow evening. Will let you all know how I get on. Xx
Hi Hun i wrote a simular post not long ago, I feel exactly the same as you Hun I'm waiting on a lap, I have had on going problems for 4 years now and in pain daily, I have noticed though the last couple of months a routine with the pain and getting different symptoms. I'm really frightened about surgery incase in wasting there time and if I am imagining things. Hope you get sorted soon lovely xxx
It's the fear of the unknown Hun, hate being a pest but on the other worrying about what it could possibly be and not making a fool of urself if they come and say that everything seems normal. Just getting all organised for tomorrow and being a stroppy moo at the same time lol. Had symptoms for a few years and they put it down to bad periods/urine infections/sciatica/thrust u name it they've said it. Now unexplained bleeding from front and back but once again all tests and biopsies came back clear. Just so frustrated and have no quality of life when I keep having days off work due to being kept in hospital for them to just control the pain. Think I'm just feeling sorry for myself tonight. Sorry ladies xx
Good luck for today. Your journey sounds similar to many of us. Laparoscopy is the only way to diagnose endo so it's nothing to worry about that no other test has showed it up - easier to write than believe I know.
I too get much more pain on sitting and particularly hard chairs. All part of the fun of Endo
I would say you won't feel like holiday as you'll want home comforts but it does depend on what they do - if just diagnostic then you may not feel bad but if they do some treatment I expect you'll feel quite uncomfortable and very tired for a couple of weeks
Thanks Marcia, just getting ready to go I'm in this afternoon. Nerves are kicking in big time but hopefully we get some answers. I'll let you all know how I get on. Thank you again for all your support puts a smile on my face to know I'm not alone even tho it feels it sometimes. Love to you all and I'll update you once I'm out and feeling bit better. Xxx
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