I have never posted on a website before, but felt compelled to share my experience so people know that sometimes there is hope. I had laparoscopic surgery to remove widespread endometriosis back in September 2015 and it has totally changed my life. I just want people to know that it can get better (even if one day it comes back!) and to encourage them to push for a referral for diagnostic laparoscopy and not be dismissed.
I've had excruciating period pain since I was eleven - abdominal and back pain that caused me to cry my eyes out in public, making the strangest noises (like giving birth) when in the throws of cramping, vomiting, ridiculous bloating, diarrhoea and 8 days of very heavy bleeding (changing tampons every couple of hours). I'd missed at least one day of school/work every month for 20 years. I laid in bed with hot water bottles shaking, taking tramadol, mefenamic acid and paracetamol in great quantity and feeling like they didn't even touch the sides. Sometimes it felt as though I planned my life around my period - when I could and couldn't conduct an important meeting, go to an event, go out for dinner etc.
I did go to the doctors, repeatedly, for years. I was given painkillers, put on the pill and told most people get period pain and basically to toughen up. The straw that broke the camel's back was getting stuck between my bed and the bathroom, half standing, unable to move, in too much pain to even cry and just thinking "no, this is not acceptable". I'm fortunate to have good insurance through work so decided to go private and basically demanded my doctor referred me to the leading women's hospital in London. I saw a fabulous consultant who chatted to me, did an internal scan and blood test to rule out other issues and I was booked in for exploratory surgery within a few weeks. She did the surgery with 2 tiny (1cm) incisions (hidden below the knicker line) and found quite widespread endo accross my womb and pelvis. The consultant burnt it all off there an then (my husband said whole thing took about an hour and a half) and the rest, as they say, is history.
The op left me a bit fragile and weak for a week or so, but since last September I can honestly say my life has changed so dramatically for the better. I barely even notice my periods, which are now 3-4 days of very light bleeding, and, if I get a little bit of cramping (which has only happened a few of times) a couple of ibuprofen knocks it on the head.
I wish someone had diagnosed me when I was a teenager at one of my many pleading visits to the doctors and hope this post might encourage people to think about surgery as an option.
I cannot recommend the surgery highly enough. I am finally free.